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Re: What now? Lupron? Danazol? Another Surgery?From: aj (anonymous@obgyn.net)Thu Jul 15 17:43:21 2004
At Wed, 10 Mar 2004, Franny wrote: > >Hello All, > >I posted a couple of weeks ago about going back to the doctor, and I >recently did, and will see the doctor again in two weeks. After a lot >of discussion, it was their opinion that my next best option was either >Danazol, or Lupron, after all, what else do I have to lose? No mention >of another surgery. > >The prospect of either of those drugs terrifies me. I have been doing a >lot of research on both of drugs and found information that suggests >these are effective drugs, and other that have suggested that these are >drugs with undesirable side effects and are very hard on your body. If >it were up to me right now, I would opt out of using those drugs, I have >not found anything that convinces me that the benefits outweigh the side >effects and potential ineffectiveness. I would almost rather have >surgery again before I put that sort of drug into my body. But how do I >explain how freaked I am by these drugs and that I am really leaning >towards using them only as an absolute last resort? > >I am curious, if you have been on Lupron or Danazol, how did you feel? >Were they effective? Did your pain stop? Were the side-effects >tolerable? How soon, if at all, did symptoms come back? > >-- >Franny >
-- First of all you are not alone. i am a 25 year old veteran of endometriosis goin on ten years. i have done the lupron but when i did it they didnt have the medications for the hotflashes like they do now. how do i know? well they want me to go through it again. after 3 surgeries and a pregnancy they told me would never happen, i still have problems. my plea for women to not have hysterectomies for this is very important all the research and studies say the same thing , if you have it no guarantee the pain will go away. and every woman i have talked to including my mother, oh yes girls i have probably passed this down to my daughter just like it was to me.i plead with any woman with endo to please do the following things before they use surgery or drugs. first of all chANGE YOUR DIET AND LOSE WEIGHT STAY AWAY FROM GROWTH HORMONES AND FIND SOMEONE IN YOUR AREA THAT DOES ABDOMINAL MASSAGE. YOU KNOW A TRAINED PROFESSIONAL RIGHT NOW IS WORKING ON MY UTERUS AND TAKING THE RETROGRADE UTERUS IVE HAD SINCE BIRTH AND IS
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