ENDO Messages for July, 2004: Re: How do you work with these disease???

Re: How do you work with these disease???

From: amy (anonymous@obgyn.net)
Thu Jul 1 23:14:16 2004

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At Thu, 1 Jul 2004, anonymous@obgyn.net wrote: >
>Yes, I'm single and unfortunately have to work to survive. Luckily, I
>don't have kids to take care of too like some women do. I don't see how
>they do it sometimes. There's been times, I thought I might get fired
>over this stuff too. I mean I was missing at least 1 day a month,
>sometimes more.
>
>I was having severe fatigue problems a few years ago. I would come home
>every night and go to bed or the couch almost every night. Every
>weekend I was SURE if I just slept in late that weekend, I'd catch up
>and be OK. But, that went on for a year and I never felt like I caught
>up on my sleep. Then, I started having memory problems. Sometimes I
>felt like I was in a fog. I'm a paralegal and before all this had a
>memory like a steel trap. I remembered EVERYTHING. So, it was pretty
>scary to flat out not remember stuff that apparently happened.
>
>Luckily, I found a nutritionat doctor and got my diet cleaned up. Most
>people just don't realize how truly horrible packaged foods are. There
>is so much sugar, bleached starch which turns straight into sugar,
>artificial junk, and NO vitamins because they've all been processed out.
>It's not wonder we are exhausted. Add to that a disease like Endo which
>takes all your body's strength to fight, and you're doomed.
>
>Read some of the back posts on this site about some of the natural
>alternatives some of us have tried i.e. herbs, natural progesterone and
>changing what your eat. It may not "cure" Endo or take "all" the
>fatigue away, but it's helped a lot of us enough to lead relatively
>normal lives.
>
>At Wed, 30 Jun 2004, Jolene wrote:
>>
>>Hey... I know how you are feeling, helpless, hopeless, depressed, in
>>pain. I was actually just fired three days ago because I could not work
>>due to severe pelvic pain... I literally could NOT sit down. I was
>>already depressed and felt isolated, now it's even worse. Not only do I
>>have to deal with the pain and depression that endo causes, but now I
>>have the burden of looking for another job. They shouldn't be allowed
>>to fire people if they are in so much pain they can't even walk. I'm
>>sorry that you are having problems, if you'd like to talk, my yahoo I.D.
>>is burninbridges1by1. I am also sorry that I don't have any words of
>>encouragement. Please just pray and understand that it usually gets
>>worse each month, even with treatment.
>>
>>At Wed, 30 Jun 2004, Mercy wrote:
>>>
>>>Hi, I know how depressing it is to feel as though you're not
>>>functioning. I work fulltime but I am fortunate in that I can work from
>>>a home office so...I can utilize my comfort measures on days that I'm
>>>not feeling well. As far as college, have you considered at least
>>>getting started by taking an online course? Alot of colleges, even local
>>>community colleges, offer online courses. Might be a way for you to
>>>accomplish something at your own pace and in a comfortable setting. Hope
>>>this helps. Take care.
>>>
>>>At Wed, 30 Jun 2004, Rachel wrote:
>>>>
>>>>I was just wondering, for those who work full time, how do you do it?
>>>>Are you just not as sick as me? Or just end up killing your body doing
>>>>it. I'm lucky to be able to live at home with my parents at the time,
>>>>and don't need to work. But my Dad is starting some new work soon, and
>>>>today ask me if I will be too sick to be his secretary for the time, and
>>>>if he should hire someone else. Well this is very depressing! Because I
>>>>had planned, for years to be his secretary for a time being, before
>>>>going off to college. And considering I spend 75% of the time laying
>>>>around, there is no way I can sit at a desk 8 hours a day! Its not just
>>>>the very sever pains I have 24/7, but also the horrible fatigue and body
>>>>aches. And I have tried and tried to do things to help it, but notihng
>>>>will! I don't know if it is still a side effects from the depo shot I
>>>>got in feb. that is still causing the ver bad fatigue, or just the endo
>>>>and pain taking all my energy, but I got no energy or strength
>>>>whatsoever! I always have to rest at least a couple of times a day! So
>>>>what is it that makes you all be able to work? What are your stretegies?
>>>>I am so depressed because I really want to be able to do something, be
>>>>normal like everyone else, and could really use the money! Not sure when
>>>>I will be able to go to college, but saving up for it would help a ton!
>>>>Thanks for any replies!

--
The Clinton admin.  passed a bill called FMLA(family medical leave act), your employer will have they paperwork.
  your doctor can fill out this paperwork which will states that you have a medical condition which requires you
to have periodic visits to the doctor, for an episodic incapicity rather than a continuing period of absince.
this will give you up to 12 weeks of unpaid leave that you can use with no danger of using your job.
  i have to take 2-3 days a month of because of incapacitating pain and my docotr was glad to fill the
 paper out for me to protect my job.  here is a link http://www.dol.gov/esa/whd/fmla/

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