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Re: How do you work with these disease???From: Vanessa (anonymous@obgyn.net)Wed Jun 30 13:25:48 2004
At Wed, 30 Jun 2004, Rachel wrote: > >I was just wondering, for those who work full time, how do you do it? >Are you just not as sick as me? Or just end up killing your body doing >it. I'm lucky to be able to live at home with my parents at the time, >and don't need to work. But my Dad is starting some new work soon, and >today ask me if I will be too sick to be his secretary for the time, and >if he should hire someone else. Well this is very depressing! Because I >had planned, for years to be his secretary for a time being, before >going off to college. And considering I spend 75% of the time laying >around, there is no way I can sit at a desk 8 hours a day! Its not just >the very sever pains I have 24/7, but also the horrible fatigue and body >aches. And I have tried and tried to do things to help it, but notihng >will! I don't know if it is still a side effects from the depo shot I >got in feb. that is still causing the ver bad fatigue, or just the endo >and pain taking all my energy, but I got no energy or strength >whatsoever! I always have to rest at least a couple of times a day! So >what is it that makes you all be able to work? What are your stretegies? >I am so depressed because I really want to be able to do something, be >normal like everyone else, and could really use the money! Not sure when >I will be able to go to college, but saving up for it would help a ton! >Thanks for any replies! Hi Rachel, I work full time...I am a single mother who walks her son for 1/2 hr to the sitter each morning b4 I catch the bus to work. I have to do the same, in reverse, each evening. It get's really hard and someday's my 3 year old just does not cooperate. Also the weather is so bad, snow that is too hard to walk through in the mornings, during winter, to the rain and intense heat during other seasons. Then having to do that while I am going through all the pain and fatigue from Endo. Getting through the work day once I'm there is another issue as well. Sometimes pain is so bad and the fatigue is so draining that I honestly wonder if I can even do the journey home. I can barely walk, talk or function. I am just mentally, physically, and emotionally EXHAUSTED! But I do it as much as I can. Somedays I just don't make it though. I suffer greatly at work when it comes to attendance (the rare occasion I just can't make it from the pain and/or exhaustion, and the Dr's appointments and treatments , and surgeries). I have been placed on an attendance plan at work and given some grief but I have been keeping them aware of their duty to accomodate through the Human Rights Commission but I'm not sure how long that will keep my job safe. I am actually pretty scared that I will lose my job. I really want to work and feel productive. I also like the ability to provide good food, clothing and a decent home for my son...I don't want to lose all that i have worked so hard for. I have struggled my way through it for so long because I still have not lost all hope yet, even though I am slowly getting to that point. I would hate to lose everything now. I have to maintain a sense of me or what is it all for. I would encourage you to go back to work. It's never hurts to try. The worse that can happen is not being able to do it...but the best that can happen is it will enrich your life in ways that will make it worth the struggle.
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