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Re: Negative laparoscopy... But ALL of the endo symptomsFrom: anonymous (anonymous@obgyn.net)Wed Jun 23 19:32:05 2004
>>Hello, >> >>I am very frustrated, and am so thankful for this forum. >><br><br> >>10 days ago, I had a diagnostic lap to explore what my gyn. thought was >>endometriosis. Apparently, he did not find anything abnormal and has >>suggested appointments with a urologist and a GI doc. >><br><br> >>Prior to this, I have taken the interstitial cystitis quiz, and scored >>low. I have also been to the ER twice for severe lower right quadrant >>pain. I have had a CT scan and 2 ultrasounds, b/c the ER docs were >>thinking it might be my appendix. Again, nothing abnormal appeared on >>these tests. >><br><br> >>Now the pain is on BOTH sides, it feels like my ovaries are going to >>explode. The pains are sharp and stabbing -- sometimes so much so that >>the pain radiates through my pelvis to my tailbone, hips and down my >>leg. For the past 6 months, my symptoms have started to get really >>horrible around my period, and I had always had pretty normal periods >>before that. >><br><br> >>My symptoms include, sharp stabbing pains that are different than >>menstrual cramps, throbbing/radiating groin, hip, leg and tailbone pain, >>nausea, bloating, diahhrea w/my period, fatigue, painful bowel >>movements, constipation, chills, no appetite and vaginal dryness. I >>have a family history of endo on both sides (sister, grandma, aunts). >>Also, I am on ortho-tricyclen bc pills - I am 30 and have been on them >>for about 10 years. >><br><br> >>Before these problems, I have always been very, very healthy. I feel >>like I have tried everything -- from being treated for a non-existent >>kidney infection to being referred to new doctors -- please help! I >>don't want to seem skeptical, but just because my doctor didn't see endo >>during the lap, does that mean that I truly don't have it? To me, my >>symptoms seem more endo-related than IBS, but what do I know? :) >><br><br> >>Also, right before my lap, I was due to get my period, so my doc had me >>start my new pack of bc pills early so that I would skip a period. When >>I did this, the awful symptoms that I get pre-period calmed down a bit. >>Hmmmmmm... >><br><br> >>So sorry for my long post -- thank you so much for any insight you can >>provide!<br><br> >>Donna Donna, I have heard that endo can be microscopic and therefore not able to be seen through a laparoscopy. If you check the search button on this forum there might be more info. Did your Dr. suggest what else it could be? I have almost all the same symptoms you described (they always think it is my appendix in the ER 2 lol). No dr or specialist so far wants to do a lap because I am 19, although many women on here have had them at younger ages. Anyway I guess my biggest concern is that they find nothing and I have to go back to squar one to figure out the problem. One dr. suggested fibromyalgia...I don't know much about that but you might want to look into it. Also If you had decressed pain when you skipped your period, have you tried taking the pill continuesly? Skipping the pills when you would normally have your period and immediately starting a new pack? This has helped me a bit although I still have occasional breakthrough bleeding aand some pain. Anyway I don't know if this helps at all but just know that you are not alone with this! I hope you feel better and get this all figured out soon!!! Let us know if your dr. suggests something else it might be. Good Luck! Karen
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