ENDO Messages for June, 2004: Re: A few questions HELP PLEASE!

Re: A few questions HELP PLEASE!

From: anonymous@obgyn.net
Thu Jun 17 10:13:09 2004

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In reply to: Georgie: "Re: A few questions HELP PLEASE!"

I had LUNA with my first Lap. I had no pain for several years afterwards, but I don't know if it was because of the LUNA or just removing the Endo. Before my 3rd Lap, a doctor recommended another "nerve cutting" surgery that some doctors do called Presacral neurectomy. It is a more dangerous procedure in that, because of the location of the nerves being cut, there is a greater chance of the doctor making a mistake and cutting something else. There are also some women who have posted on this site that they have had sexual problems after having this procedure because of numbness in that area. And so many women had no pain relief with this procedure that I decided against it.

Make sure you know which procedure your doctor is talking about before you consent to it.

Also, I think if you were too intimidated by this doctor to be able to ask questions, you should find one that you are comfortable with. It is very important to be able to express your concerns and ask questions to be able to make good decisions for you. Personally, I've had better luck with nutritional type doctors when it comes to pain relief. Getting off dairy worked miracles for me about 7 years ago. Unfortunately, apparently, getting off dairy doesn't completely stop Endo, just maybe slows it down. But, I was ready to have another surgery when I my doctor suggested getting got off dairy. Just by doing that I was able to postpone it another 7 years, so it was worth it to me. I'm now trying getting off wheat, which for me, is MUCH harder since I'm a vegetarian and wheat is in EVERYTHING vegetarian. I'm also increasing "good oils" which seems to be helping.

I've also had fibromyalgia and chronic fatigue over the years, at least that's what my doctors and I think it was, since there is no real test for them. Changing my diet (and getting out of a stressful job) really helped those conditions as well. Still have allergies, but herbs help that as well.

I would be concerned about taken any drug long term because your liver does have to break down everything you take. Going the natural route seems like a much better alternative to me.

Good luck!

At Wed, 16 Jun 2004, Georgie wrote: >
>Hi Candace,
>
>There is an article on this site about the LUNA (Laparascopic uterine
>nerve ablation) proceedure - they seem to think that it isn't much use
>to women with Endo pain ("None of those randomised trials have really
>shown any evidence that LUNA in its own right is effective for women
>with endometriosis.") See the article for more info:
>
>http://www.endozone.org/display.asp?page=congress_NWMA2004-johnson1
>
>Also, do a search for LUNA on this forum, I think it has been discussed
>before.
>
>About your other question - pain and infertility are the main problems
>with Endo. However, I don't mean to scare you, but women with Endo seem
>to suffer from more immune-related problems than other women - things
>like allergies, excema, fibromyalgia, chronic fatigue, lupus, krones
>disease etc.
>
>You might want to look at dietary changes to help with the pain (may
>also help with the immune related things if you have any). I have had
>Endo symptoms since 16, and was diagnosed 2 yrs ago at 26. In the last
>month I have given up wheat, and I don't know if it is that or something
>else (I'm also on a different BC pill), but this month I only had a half
>day off work and I didn't take ANY painkillers (not at all 'normal' for
>me!). Apparently wheat and dairy are the 2 things we endo girls should
>look out for. I'm not quite ready to give up cheese yet, but I'm
>definitely going to try once I have got the hang of this no-wheat thing.
>
>Good luck in your search for pain-free days :)
>Georgie
>
>At Wed, 16 Jun 2004, Candace wrote:
>>
>>OK. So I went to the Reproductive Endocrinologist today. He really
>>intimidated me, so I didn't get to ask many questions.
>>
>>He wants me to have another lap 5 mo. after my last one, and he pretty
>>much said my last OB Was a twit for having me on BCP and having periods.
>>He also wants to cut the nerves..
>> ~~> Has anyone had success with this?
>>
>>He also asked if all that really bothered me was the pain, and I wanted
>>to say yes you moron that's the only reason I'm here... Instead I said.
>>Yes sir. Then he said is all you want pain relife... I said yes sir by
>>any means necessary.. He put me on Tordal
>>~~> Does this work? It didn't work through an IV in the hospital so will
>>it work better in Pill form?
>>
>> Is the recovery time longer with the nerve cuts?
>>
>>Also is there much else then pain with Endo? I mean besides bleeding and
>>no sex? All I seem to have is pain if there's other things too.
>>
>>--
>>Best of luck!
>>
>>Candace (lilly)
>>
>--
>Georgie
>

Next message: anonymous@obgyn.net: "Re: Endo or IBS?"
Previous message: Angie: "Re: Help! I am so Confused! Do I have ENDO??? I am losing my mind!"
In reply to: Georgie: "Re: A few questions HELP PLEASE!"

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