ENDO Messages for June, 2004: Re: 27 yr. old -- is Lupron the answer

Re: 27 yr. old -- is Lupron the answer

From: anonymous@obgyn.net
Tue Jun 8 09:39:10 2004

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Well, I have to disagree with Kasi when she says "there's no harm in trying". All you have to do is read the posts here and all over the net to see that there can be SERIOUS harm after trying Lupron. I'm like a lot of you. Endo keeps coming back (just had my 3rd surgery and still having some pain) and I'm at my wits end trying all kinds of options to find some kind of relief, but I DEFINITELY WOULD NOT try Lupron. I know it's hard when doctors pressure you to take it. But, it's only because they really have no good answers for us. This is as close as they can get, and honestly I don't think they really care about the side effects as long as it does what "they" set out to do.... get rid of Endo. I read on the web that over 6,000 women had filed complaints with the FDA because of side effects from Lupron, many that did NOT go away after stopping it's use. There are even a few poor women who are on permanent disability now because of seizures caused by Lupron. I told this to my doctor when he suggested it, and he looked shocked. Obviously and sadly, doctors do not have time to read ALL the research on drugs they prescribe. They just get the nice pretty brochures showing the research that showed that it helps (without all that pesky research showing that it does not help many times and may cause serious side effect).

I know it's frustrating when you feel like you've tried EVERY FREAKING thing under the sun (believe me, I've been there), but this is definitely not an avenue I would pursue. Read some of the back posts on here about some natural remedies some of us have tried. It may not "cure" Endo (but what does?), but you find enough relief to live a decent life.

At Mon, 7 Jun 2004, kasi wrote: >
>hi 'confusedinendo';)
>
>i see you have a lot of posts, but i'll put mine in anyway.
>
>i'm like you, and have endo everywhere, which is impossible to remove by
>surgery, and i just recieved my second injection of lupron about a week
>or so ago.
>
>horror stories will be online because people who do not have good side
>effects from lupron are those that want/need the support and therefore
>feel the need to tell people about it so they can share their stories
>and feel like they're not the only ones suffering (i'm one of them).
>
>i was so scared and so nervous about trying lupron. but, i decided to
>try it, because i wanted to see if it would work, and if didn't or i
>would get bad side effects, then i could always go off of it and try
>something else.
>
>for the first month, it hasn't been easy, but when i saw my gyne after
>the first month, he said that bad side effects can linger for up to 5 or
>6 weeks after the first injection. he convinced me to go for one more
>month and that if i was still feeling like how i am at the end of the
>second month, then we could try something else.
>
>the cost is something that isn't fun either, i know. i'm lucky and get
>covered by not only my university medical, but by my fathers work as
>well. however, because lupron is so effective, its worth the cost, i
>believe.
>
>i'd suggest for you to try it for one or two months. my pain has nearly
>completely disappeared, but i have some side effects that i dont really
>like with the lupron. i had headaches for the first month, and still
>continue to have nausea, but really nothing that tea doesn't help. i
>have also been feeling depressed, which is the main reason for me
>wanting to stop lupron at the end of this month if it doesnt get better,
>and that occurs because i am not producing any more estrogen. it's just
>mainly that i can't exactly control all my emotions, and if i'm confined
>in my apartment for longer than a day without getting out as i dont work
>much, it gets worse, so its quite variable depending on diet, work and
>activity. theres no harm in trying...
>
>good luck:)
>
>--
>kasi
>

Next message: Tricia: "Re: What pain meds do you take??"
Previous message: anonymous@obgyn.net: "Re: Calcium...."
In reply to: kasi: "Re: 27 yr. old -- is Lupron the answer"
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