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Re: 27 yr. old -- is Lupron the answer
From: anonymous (anonymous@obgyn.net)
Mon Jun 7 17:38:03 2004
I though Lupron makers were getting sued. It must be b/c it's not
working.
At Mon, 7 Jun 2004, Vanessa wrote:
>
>I am beginning to think that Lupron is not the answer. I have posted my
>side effects on this site in response to one of Kim's earlier posts (and
>Kim I want to let you know of the newest side effect). Today I now
>notice that whenever I go from standing to sitting (or visa versa) or
>when I walk up or down stairs my knees hurt SO BADLY! It feels like they
>are about to break. I am so scared that this drug has done some pretty
>crazy stuff to my bones. This isn't the first side effect I've
>experienced in relation to my bones. The other ones haven't gone away
>either...new side effects just keep piling on to the old ones.
>
>--
>Vanessa
>
>At Mon, 7 Jun 2004, Kim wrote:
>>
>>Hi there... I have written several messages lately trying to decide if
>>I should take the 2nd injection of Lupron. I am not advising you to go
>>for it or not, but just wanted to offer some support in your decision. I
>>read pretty horrible things about Lupron before I agreed to it as well.
>>I am about 3 weeks into it, so far I do not have life altering side
>>effects (just annoying ones) but also do not have any pain relief. I
>>would be hesistant to put all your faith in any one drug- think about
>>the quality of your life now and whether or not you are willing to
>>endure the side effects (regardless of the pain relief.) I was assured
>>it would help, so I am trying to keep my hopes up even though the pain
>>hasn't gone away.
>>I can tell you that I do have the night sweats, loss of appetite and
>>nausea, slight fatigue, and a headache (which really sucks since I am in
>>school full-time.) Like I said before, none of these are
>>life-threatening and I will gladly endure if it means my pelvic pain
>>will be relieved. I have also talked to some people that do not
>>experience side effects like I have... they may have slightly different
>>symptoms or none at all. I am also on the add-back therapy (Premarin)
>>to help with bone loss and the side effects. I assume all side effects
>>would be worse if I weren't on the Premarin, but can't say for sure. I
>>take my Premarin at night because I notice it is slightly upsetting to
>>my stomach (which is already upset from Lupron.) I have talked to some
>>people not on add-back and that is something they have decided with
>>their doctors. Mine opted to prescibe it right away to avoid excess
>>side effects. I am trying to think of other things to tell you, but I'm
>>sure you will make the right decision for yourself. I got some good
>>info from the actual Lupron website, and also from the Premarin website
>>(since they are required to post all possible effectsetc. , and from
>>the nice people on this site. Good luck to you and feel free to write
>>whenever. Kim
>>
>>At Mon, 7 Jun 2004, ConfusedinEndo wrote:
>>>
>>>Hi-
>>>I just had a lap. and my Dr found lots of endo all over the place,
>>>pretty much on every surface in my pelvic area. He excised everything
>>>he could see but since it was extensive he wants to put me on Lupron.
>>>I have read pretty much nothing but horror stories about that drug and
>>>now I just don't know what to do.
>>>To top it off, it is not covered by my insurance, so now I am even more
>>>reluctant to shell out the big bucks for something that could (from what
>>>I've read) ruin my life for the duration of the meds and beyond.
>>>I am willing to try some alternative methods and of course I hope it
>>>just never comes back.
>>>any advice would be greatly appreciated.
>>>Thanks
>
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