Re: 27 yr. old -- is Lupron the answer
From: Vanessa (anonymous@obgyn.net)
Mon Jun 7 17:26:25 2004
I am beginning to think that Lupron is not the answer. I have posted my
side effects on this site in response to one of Kim's earlier posts (and
Kim I want to let you know of the newest side effect). Today I now
notice that whenever I go from standing to sitting (or visa versa) or
when I walk up or down stairs my knees hurt SO BADLY! It feels like they
are about to break. I am so scared that this drug has done some pretty
crazy stuff to my bones. This isn't the first side effect I've
experienced in relation to my bones. The other ones haven't gone away
either...new side effects just keep piling on to the old ones.
--
Vanessa
At Mon, 7 Jun 2004, Kim wrote:
>
>Hi there... I have written several messages lately trying to decide if
>I should take the 2nd injection of Lupron. I am not advising you to go
>for it or not, but just wanted to offer some support in your decision. I
>read pretty horrible things about Lupron before I agreed to it as well.
>I am about 3 weeks into it, so far I do not have life altering side
>effects (just annoying ones) but also do not have any pain relief. I
>would be hesistant to put all your faith in any one drug- think about
>the quality of your life now and whether or not you are willing to
>endure the side effects (regardless of the pain relief.) I was assured
>it would help, so I am trying to keep my hopes up even though the pain
>hasn't gone away.
>I can tell you that I do have the night sweats, loss of appetite and
>nausea, slight fatigue, and a headache (which really sucks since I am in
>school full-time.) Like I said before, none of these are
>life-threatening and I will gladly endure if it means my pelvic pain
>will be relieved. I have also talked to some people that do not
>experience side effects like I have... they may have slightly different
>symptoms or none at all. I am also on the add-back therapy (Premarin)
>to help with bone loss and the side effects. I assume all side effects
>would be worse if I weren't on the Premarin, but can't say for sure. I
>take my Premarin at night because I notice it is slightly upsetting to
>my stomach (which is already upset from Lupron.) I have talked to some
>people not on add-back and that is something they have decided with
>their doctors. Mine opted to prescibe it right away to avoid excess
>side effects. I am trying to think of other things to tell you, but I'm
>sure you will make the right decision for yourself. I got some good
>info from the actual Lupron website, and also from the Premarin website
>(since they are required to post all possible effectsetc. , and from
>the nice people on this site. Good luck to you and feel free to write
>whenever. Kim
>
>At Mon, 7 Jun 2004, ConfusedinEndo wrote:
>>
>>Hi-
>>I just had a lap. and my Dr found lots of endo all over the place,
>>pretty much on every surface in my pelvic area. He excised everything
>>he could see but since it was extensive he wants to put me on Lupron.
>>I have read pretty much nothing but horror stories about that drug and
>>now I just don't know what to do.
>>To top it off, it is not covered by my insurance, so now I am even more
>>reluctant to shell out the big bucks for something that could (from what
>>I've read) ruin my life for the duration of the meds and beyond.
>>I am willing to try some alternative methods and of course I hope it
>>just never comes back.
>>any advice would be greatly appreciated.
>>Thanks
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