ENDO Messages for June, 2004: Re: 27 yr. old -- is Lupron the answer

Re: 27 yr. old -- is Lupron the answer

From: Kim (anonymous@obgyn.net)
Mon Jun 7 17:04:21 2004

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Hi there... I have written several messages lately trying to decide if I should take the 2nd injection of Lupron. I am not advising you to go for it or not, but just wanted to offer some support in your decision. I read pretty horrible things about Lupron before I agreed to it as well. I am about 3 weeks into it, so far I do not have life altering side effects (just annoying ones) but also do not have any pain relief. I would be hesistant to put all your faith in any one drug- think about the quality of your life now and whether or not you are willing to endure the side effects (regardless of the pain relief.) I was assured it would help, so I am trying to keep my hopes up even though the pain hasn't gone away. I can tell you that I do have the night sweats, loss of appetite and nausea, slight fatigue, and a headache (which really sucks since I am in school full-time.) Like I said before, none of these are life-threatening and I will gladly endure if it means my pelvic pain will be relieved. I have also talked to some people that do not experience side effects like I have... they may have slightly different symptoms or none at all. I am also on the add-back therapy (Premarin) to help with bone loss and the side effects. I assume all side effects would be worse if I weren't on the Premarin, but can't say for sure. I take my Premarin at night because I notice it is slightly upsetting to my stomach (which is already upset from Lupron.) I have talked to some people not on add-back and that is something they have decided with their doctors. Mine opted to prescibe it right away to avoid excess side effects. I am trying to think of other things to tell you, but I'm sure you will make the right decision for yourself. I got some good info from the actual Lupron website, and also from the Premarin website (since they are required to post all possible effectsetc. , and from the nice people on this site. Good luck to you and feel free to write whenever. Kim

At Mon, 7 Jun 2004, ConfusedinEndo wrote: >
>Hi-
>I just had a lap. and my Dr found lots of endo all over the place,
>pretty much on every surface in my pelvic area. He excised everything
>he could see but since it was extensive he wants to put me on Lupron.
>I have read pretty much nothing but horror stories about that drug and
>now I just don't know what to do.
>To top it off, it is not covered by my insurance, so now I am even more
>reluctant to shell out the big bucks for something that could (from what
>I've read) ruin my life for the duration of the meds and beyond.
>I am willing to try some alternative methods and of course I hope it
>just never comes back.
>any advice would be greatly appreciated.
>Thanks

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