Re: Endo with a side of God Only Knows What
From: Rosa (anonymous@obgyn.net)
Fri Jun 4 19:30:50 2004
Hi Julie,
I wanted to lend my support, in response to your post. I am so sorry
that you are going through all of this stuff. I know its hard, but try
to take it one day at a time until you have your lap - you'll get your
answers then. I too have jumped the gun and ended up getting myself
sick because I worried so much. In the end, after the lap, things
weren't as bad as I expected them to be.
I hope your lap is soon so you can get some answers and know. I am only
25 myself, so I understand your concerns about fertility and stuff. My
previous dr. wasn't the greatest and I'm currently seeing an endo
specialist. I too hope to get some definite answers soon.
Good luck to you and feel free to email me personally if you need to.
Rosa
At Thu, 3 Jun 2004, Julie wrote:
>
>Hello everyone! My name is Julie, I am 32 and I live in Dallas. Today,
>June 3 2004, I have been diagnosed with "something", likely some endo
>with a side of who knows what....A brief history on me: I had cervical
>dysplasia removed with a leep in 1998. My uterus is tilted and my mom
>had a partial hysterectomy at 38 due to massive fibroids in her uterus
>and ovary- and possbly endo. She doesn't have the records! I started to
>have digestive problems about a year ago and have tried nearly
>everything under the sun to not feel bloated, constipated and gassy
>every single moment of my life. I looked heavily into candida and have
>been on an organic, 30% raw, no white flour, sugar or artificial
>ingredients diet for 6 months. My gastro doc has done every possible
>test and each one reveals nothing. My periods have become increasingly
>more painful each year. I am completely useless for 2 to 3 days every
>month. Thank God for Vioxx. I can't remember how long it has been
>since I have really enjoyed sex. I used to, but now the thought of it
>now makes me wince in pain and I feel like crying since I have turned
>into the woman I said I would never be. Sex feels like I am being
>stabbed with a knife...I know I am not alone and my heart goes out to
>all of you! It's not fair! But, I know. I know we could be so much
>worse off than we are and we have to be thankful for what is good in our
>lives. Sometimes, after sex, I am in excruciating pain as if someone
>was twisting a red hot poker up my ass. I thought this might be related
>to my digestive problems, but decided to see my gyn anyway. When he
>inserted his finger into my rectum, I nearly jumped off the table. He
>said he was suspicious that I had endo and told me he would "just go in
>an zap" any endo and put me on Lupron and I would be fine. Immediately
>after the visit, I went to the bookstore and purchased all 3 books I
>could find. After learning my gyn only does about 12 endo cases a year,
>I made an appointment with an endo specialist in Fort Worth- who happens
>to be a contributing writer to one of the books I purchased. I saw him
>today and am quite scared. He took my history and did an exam. He knew
>right where to look, unlike my gyn, because I was in pain during the
>exam. He then did a sonogram and here's where it gets scary. The nurse
>ran out of the room to call the doctor in because she could not identify
>what she saw! My endometrium is unusually thick, some large black
>masses, some with blood supply, some not. There was alot of "hmmmmm"
>and "that's interesting" "that's unusual" going on. There's some black
>mass in my uterine wall- the type of endo that attaches itself in the
>muscle and grows roots- oh yeah and that type of endo is inoperable. I
>may have frozen pelvis- potentially inoperable. They don't know what
>the masses are, could be endo, fibroids or a generous combination of
>everything under the sun. I have never had a lap and of course that is
>the next step in getting to the bottom of this. I know nothing is
>confirmed until the lap. I trust this doctor...I am just sad and
>scared. I never thought I might be infertile or one of these rare cases
>where so much is wrong they don't know exactly where to start. The
>thought of being on drugs the rest of my life is awful since I lead a
>fairly holistic lifestyle. I have no kids but I do want to have them.
>How do you afford IVF on 30k a year? I may be jumping the gun, but the
>doctor was very puzzled- and he's the expert! Well, thanks for
>listening...I promise to keep you posted as my lap won't happen for
>another 3 weeks. I want you to know that I am praying for all of us to
>be healthy in mind and body. I pray for strength and positivity for all
>of us! God Bless, Julie
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