|
Re: Lupron with add back therapy??
From: Kim (anonymous@obgyn.net)
Sat May 29 16:24:49 2004
Hi Vanessa... no I really don't think you are overreacting!! It is
great that you researched the meds on your own.... many people don't
even bother. I am a nursing student, before nursing school I really
trusted doctors to know all about medications etc., but after seeing how
much pharmocology they actually receieve- most of their education about
medications is limited to a few pharm. classes during school, trial and
error, and through drug reps that do not routinely spend much time
talking about the negative side effects of the drug they want the doctor
to use! The doctor who prescribed my lupron did tell me about the side
effects, but he did not make it sound like they were a big deal- this is
what really irritates me. I have fractured my hip and ankle in my early
20's so I am very concerned about the Calcium depletion of lupron. I am
currently taking a multi-vit+ viactiv calcium supplements+ 3-5 serving
of low fat dairy each day-so hopefully I won't have any problems with
this. If you have a chance... can you let me know when you started
noticing the severe side effects of lupron.... I am having some only 2
weeks into it and am wondering if this is just the tip of the
iceberg???? Thanks... KIM
At Sat, 29 May 2004, Vanessa wrote:
>
>Hi Kellie,
>
>You mentioned a bone density test and I think I may need one. I just
>had my 4th Shot of Lupron. Early on in my lupron treatments I reported
>extreme leg pain to my gyn...he brushed me off and sent me to my family
>dr. I have recently been noticing that my teeth are very sensitive and
>I have a lot of pain in my ankles, wrists and even my jaw. The pain
>almost feels like the pain I had in my legs a few years ago when i had
>shin splints. I called my gyn to ask if I should be taking calcium
>supplements. His exact words were "I have never heard of bone pain as a
>side effect of Lupron so see your family dr". I then went straight to
>the pharmacy and had a pharmacist look up the side effects of Lupron and
>she told be bone pain was a very serious side effect that should be
>looked into ASAP. She gave me a print out of this info and I want to
>anonomously fax it to my gyns office. B4 Lupron I was on Depo Provera
>(which is also known to deplete calcium levels) but my gyn has never
>discussed the importance of supplements or anything (not even add back
>therapy while on Lupron with me. I have since started taking a multi
>vitamin and calcium supplements on my own. I don't understand how dr's
>can prescribe a serious medication like Lupron and not realize that bone
>pain is a side effect...especially after depo provera...2 drugs in 3
>years that are known to cause bone problems....how could he dismiss me
>like that? I AM SO FRUSTRATED!!! My health is at risk and my gyn just
>keeps ignoring my symptoms. If I go back to my family Dr he just thinks
>I am whining...I don't know what to do! How can a Dr not understand that
>2 drugs that are known to deplete calcium levels can cause bone loss? I
>am not a dr but it seems pretty logical to me. What happens when dr's
>like this prescribe medications to patients who do not research things
>on their own? That is a scary thought!!! I am now afraid that if I take
>my dr's word on anything I am putting my life at risk. That is a scary
>thought to have as well. Shouldn't we be able to trust Dr's with our
>life? My Dr told me there no symptoms to Lupron except weight gain, hot
>flashes and depression, and said even those were not serious.
>
>Sorry so long but I need some feedback (from anyone) so I don't feel
>like I am over-reacting or going crazy.
>
>--
>Vanessa
>
>At Sat, 29 May 2004, Kellie wrote:
>>
>>I took the Lupron Injections for 12 months, 6 with add back, 6 without
>>following my first lap. I had an initial problem with headaches and hot
>>flashes started a couple of weeks after my first shot, but these side
>>effects were NOTHING compared to what I felt like prior. To have the
>>respite from my periods, and to not have any of the pain that was going
>>with it was wonderful. I went from the shots to progesterone to try and
>>keep from having a period until I was ready to attempt pregnancy. I do
>>recommend having a bone density test done at the beginning of lupron
>>therapy and to make sure to take extra calcium and do weight bearing
>>exercise. My family is pre-disposed to osteoperosis and we found out
>>early that I have lower density in my spine, so we kept a close eye on
>>the bone density. I wish I could do lupron therapy again. It was way
>>easier than the endo (or even pregnancy!).
>>
>>--
>>Kellie in NC
>>
>>>Hello all!
>>>
>>>I am having my first lap on June 3rd. Afterward, my doctor has
>>>suggested Lupron. I told him about all of the negative things I have
>>>read and heard about the drug and he said most of his patients do well
>>>with add back therapy.
>>>
>>>I have seen several posts regarding Lupron but I was interested in
>>>hearing from those that had add back therapy with the Lupron.
>>>
>>>I am going to try continuous birth control pills first, and if that
>>>doesn't work I will consider the one month Lupron injection.
>>>
>>>Thanks in advance.. this is a great endo board!!!
>>>
>>>--
>>>Angie
>>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)