ENDO Messages for May, 2004: Re: Lupron with add back therapy??

Re: Lupron with add back therapy??

From: Vanessa (anonymous@obgyn.net)
Sat May 29 10:28:21 2004

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Hi Kellie,

You mentioned a bone density test and I think I may need one. I just had my 4th Shot of Lupron. Early on in my lupron treatments I reported extreme leg pain to my gyn...he brushed me off and sent me to my family dr. I have recently been noticing that my teeth are very sensitive and I have a lot of pain in my ankles, wrists and even my jaw. The pain almost feels like the pain I had in my legs a few years ago when i had shin splints. I called my gyn to ask if I should be taking calcium supplements. His exact words were "I have never heard of bone pain as a side effect of Lupron so see your family dr". I then went straight to the pharmacy and had a pharmacist look up the side effects of Lupron and she told be bone pain was a very serious side effect that should be looked into ASAP. She gave me a print out of this info and I want to anonomously fax it to my gyns office. B4 Lupron I was on Depo Provera (which is also known to deplete calcium levels) but my gyn has never discussed the importance of supplements or anything (not even add back therapy while on Lupron with me. I have since started taking a multi vitamin and calcium supplements on my own. I don't understand how dr's can prescribe a serious medication like Lupron and not realize that bone pain is a side effect...especially after depo provera...2 drugs in 3 years that are known to cause bone problems....how could he dismiss me like that? I AM SO FRUSTRATED!!! My health is at risk and my gyn just keeps ignoring my symptoms. If I go back to my family Dr he just thinks I am whining...I don't know what to do! How can a Dr not understand that 2 drugs that are known to deplete calcium levels can cause bone loss? I am not a dr but it seems pretty logical to me. What happens when dr's like this prescribe medications to patients who do not research things on their own? That is a scary thought!!! I am now afraid that if I take my dr's word on anything I am putting my life at risk. That is a scary thought to have as well. Shouldn't we be able to trust Dr's with our life? My Dr told me there no symptoms to Lupron except weight gain, hot flashes and depression, and said even those were not serious.

Sorry so long but I need some feedback (from anyone) so I don't feel like I am over-reacting or going crazy.

--
Vanessa

At Sat, 29 May 2004, Kellie wrote:
>
>I took the Lupron Injections for 12 months, 6 with add back, 6 without
>following my first lap.  I had an initial problem with headaches and hot
>flashes started a couple of weeks after my first shot, but these side
>effects were NOTHING compared to what I felt like prior.  To have the
>respite from my periods, and to not have any of the pain that was going
>with it was wonderful.  I went from the shots to progesterone to try and
>keep from having a period until I was ready to attempt pregnancy.  I do
>recommend having a bone density test done at the beginning of lupron
>therapy and to make sure to take extra calcium and do weight bearing
>exercise.  My family is pre-disposed to osteoperosis and we found out
>early that I have lower density in my spine, so we kept a close eye on
>the bone density.  I wish I could do lupron therapy again.  It was way
>easier than the endo (or even pregnancy!).
>
>--
>Kellie in NC
>
>>Hello all!
>>
>>I am having my first lap on June 3rd.  Afterward, my doctor has
>>suggested Lupron.  I told him about all of the negative things I have
>>read and heard about the drug and he said most of his patients do well
>>with add back therapy.
>>
>>I have seen several posts regarding Lupron but I was interested in
>>hearing from those that had add back therapy with the Lupron.
>>
>>I am going to try continuous birth control pills first, and if that
>>doesn't work I will consider the one month Lupron injection.
>>
>>Thanks in advance.. this is a great endo board!!!
>>
>>--
>>Angie
>>

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