ENDO Messages for May, 2004: Re: ENDO ALL OVER AGAIN

Re: ENDO ALL OVER AGAIN

From: Kim (anonymous@obgyn.net)
Sat May 29 08:35:49 2004

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In reply to: JENN: "ENDO ALL OVER AGAIN"

At Fri, 28 May 2004, JENN wrote: >
>I AM NEW TO THIS FORUM AND ITS NICE TO HAVE SOMEBODY TO SHARE THIS WITH.
>I WAS DIAGNOSED 2 1/2 YEARS AGO WITH ENDO HAD SURGERY THEN WENT ON
>LUPRON AND DEPO FOR AWHILE. SYMPTOMS GOT BETTER BUT DID NOT TOTALLY GO
>AWAY. ABOUT 6 MONTHS AGO MY SYMPTOMS GOT WORSE AGAIN AND INSTEAD OF
>DOING SURGERY AGAIN THEY PUT ME ON THE LUPRON FIRST. SO ON TOP OF ALL
>THE SYMPTOMS FROM ENDO I HAD THE SYMPTOMS FROM THE LUPRON AND NOW THAT
>THE LUPRON IS OVER MY ENDO IS BACK WITH A VENGENCE. MY BIGGEST PROBLEM
>IS PAIN MANAGEMENT. I CANT FIND A GYNO I CAN TRUST AND THAT DOESNT LOOK
>AT ME LIKE IM NUTS. IN THE LAST YEAR I HAVE BASICALLY "SHOPPED" FOR A
>GYNO AND NO ONE WANTS TO HELP ME. IS IT BECAUSE IM YOUNG? BUT THESE
>DOCTORS ARE MAKING ME FEEL LIKE ITS ALL IN MY HEAD EVEN WHEN THEY LOOK
>AT MY RECORDS THEY SEE I HAVE HAD SURGERY AND THEY PRETTY MUCH FEEL LIKE
>IT SHOULD HAVE BEEN TAKEN CARE OF. SO HERE I SIT, KNOWING THAT AS THE
>ENDO GETS WORSE MY POSSIBILITY OF HAVING ANOTHER CHILD IS GROWING SLIM.
>THANKS FOR LETTING ME VENT. I HAVE A APPOINTMENT WITH A NEW GYNO NEXT
>WEEK SO WE WILL SEE IF THINGS CHANGE.

HI.... I know there are alot of people writing in to say they have been there, but I am exactly where you are now. I wish I had some advice or something like that, but all I can say is that I am going through the same thing and it helps me when reading your story to know I am not alone. I am very excited everytime I leave my GYN's office because he was sure the birth control would take away my pain, then he was sure surgery would take away my pain, and now he is sure the lupron and premarin will take away my pain. I am trying to be optimistic, but with all of these side effects it is really hard! I spent yesterday in classes all day running to the bathroom to vomit and then last night I took a phenergan to help with that and ended up knocked out. I am only 25 and feel like there should be more to life than always thinking about this disease etc. How long after your lupron treatment did the symptoms come back? I can't imagine the logic behind this shot if the symptoms continue like this and then the endo just comes back after it is all over? What was the point, ya know? It is not as if quality of life is really any better during the lupron treatment! If you have any suggestions or want to talk, feel free to write me. Thanks, KIM

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In reply to: JENN: "ENDO ALL OVER AGAIN"

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