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Re: Question about Endo and ICFrom: Jodee (anonymous@obgyn.net)Thu May 27 23:19:41 2004
At Thu, 27 May 2004, Cindi wrote: > >At Thu, 27 May 2004, Jodee wrote: >> >>At Wed, 26 May 2004, Cindi wrote: >>> >>>Hi All, >>> >>>Can anyone tell me what exactly is IC? Is it Endo of the bladder or >>>what? >>> I was diagnosed 2 months ago with Stage 1 Endo. >>>I saw a urologist 2 days ago, hoping that during my upcoming >>>hysterectomy (I'm 49 yrs old), he would tack my bladder up. During my >>>first visit with him, he examined me internally and much to my surprise, >>>when he felt my bladder, it hurt like the dickens. They also found a >>>trace of blood in my urine. So, tomorrow I go in for a KCL test, then >>>an xray the next day, and one more test next week sometime. >>>While talking to the nurse at the urologists, I asked if any of these >>>tests would show whether I have Endo on my bladder. Her response was >>>this...."we call it Interstitial Cystitis." >>>I read a little about the KCL test and I'm sure not looking forward to >>>it....a positive test can be very painful. Has anyone had this test? >>> >>> Thanks....and I hope all of you are doing well! >>> >>>-- >>> Cindi >> >>Hi Cindi. I just had this test done aprroximately one month ago. It is >>painful...BUT nothing compared to a cytescopy!! If you test positive for >>IC, they will inject medicine directly into your bladder...thats what my >>doc did. I am 4 hours away from this specialist, so I have an upcoming >>appt to sart the injections closer to my home. I am also on Elmiron >>100mg 3x a day. The bladder injections can be done weekly...for me it >>only helped for 4-5 hours. I have heard it can take awhile. I'm also >>posting a few links where you can find some info....Feel free to contact >>me, at least u know...u do not suffer alone!! >> >>http://www.ic-network.com/forum/ >>http://www.ic-network.com/handbook/ >> >>-- >>Love and Hugs, Jodee >> >Hi Jodee, >Thanks for the info and links. I had the KCL test today and it wasn't >bad at all. Although I had no pain with it, they did say it was >positive. They gave me meds to take for any, spasms I might have and an >antihistamine. I go back tomorrow for an xray. >Today has been a bad day for me. I feel so overwhelmed with everything. >First the Endo, the bouts of constipation and almost constant pressure >in my rectum, and now this....all to get ready for my hysterectomy! I >feel like I'm falling apart. I'm really trying to be positive about >this but I am having brain overload....and now its storming like crazy >so better get off here. > > Take care all! > Cindi Hi Cindi:) I just wanted to let you know I too am having a hyst two weeks from toady. I also suffer from endo. I have had three laps and also tried Lupron...with no luck really. I am having so much pelvis pain..and I can relate to u so much!! I hope this hyst will help the both of us! I'm glad I could help u out, and I hope I can again:) Good luck with the x-ray tomorrow!!
-- Love and Hugs, Jodee
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