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Re: Question about Endo and ICFrom: Cindi (anonymous@obgyn.net)Thu May 27 16:40:34 2004
At Thu, 27 May 2004, Jodee wrote: > >At Wed, 26 May 2004, Cindi wrote: >> >>Hi All, >> >>Can anyone tell me what exactly is IC? Is it Endo of the bladder or >>what? >> I was diagnosed 2 months ago with Stage 1 Endo. >>I saw a urologist 2 days ago, hoping that during my upcoming >>hysterectomy (I'm 49 yrs old), he would tack my bladder up. During my >>first visit with him, he examined me internally and much to my surprise, >>when he felt my bladder, it hurt like the dickens. They also found a >>trace of blood in my urine. So, tomorrow I go in for a KCL test, then >>an xray the next day, and one more test next week sometime. >>While talking to the nurse at the urologists, I asked if any of these >>tests would show whether I have Endo on my bladder. Her response was >>this...."we call it Interstitial Cystitis." >>I read a little about the KCL test and I'm sure not looking forward to >>it....a positive test can be very painful. Has anyone had this test? >> >> Thanks....and I hope all of you are doing well! >> >>-- >> Cindi > >Hi Cindi. I just had this test done aprroximately one month ago. It is >painful...BUT nothing compared to a cytescopy!! If you test positive for >IC, they will inject medicine directly into your bladder...thats what my >doc did. I am 4 hours away from this specialist, so I have an upcoming >appt to sart the injections closer to my home. I am also on Elmiron >100mg 3x a day. The bladder injections can be done weekly...for me it >only helped for 4-5 hours. I have heard it can take awhile. I'm also >posting a few links where you can find some info....Feel free to contact >me, at least u know...u do not suffer alone!! > >http://www.ic-network.com/forum/ >http://www.ic-network.com/handbook/ > >-- >Love and Hugs, Jodee > Hi Jodee, Thanks for the info and links. I had the KCL test today and it wasn't bad at all. Although I had no pain with it, they did say it was positive. They gave me meds to take for any, spasms I might have and an antihistamine. I go back tomorrow for an xray. Today has been a bad day for me. I feel so overwhelmed with everything. First the Endo, the bouts of constipation and almost constant pressure in my rectum, and now this....all to get ready for my hysterectomy! I feel like I'm falling apart. I'm really trying to be positive about this but I am having brain overload....and now its storming like crazy so better get off here. Take care all! Cindi
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