ENDO Messages for May, 2004: Re: Question about Endo and IC

Re: Question about Endo and IC

From: Jodee (anonymous@obgyn.net)
Thu May 27 15:37:39 2004

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At Wed, 26 May 2004, Cindi wrote: >
>Hi All,
>
>Can anyone tell me what exactly is IC? Is it Endo of the bladder or
>what?
> I was diagnosed 2 months ago with Stage 1 Endo.
>I saw a urologist 2 days ago, hoping that during my upcoming
>hysterectomy (I'm 49 yrs old), he would tack my bladder up. During my
>first visit with him, he examined me internally and much to my surprise,
>when he felt my bladder, it hurt like the dickens. They also found a
>trace of blood in my urine. So, tomorrow I go in for a KCL test, then
>an xray the next day, and one more test next week sometime.
>While talking to the nurse at the urologists, I asked if any of these
>tests would show whether I have Endo on my bladder. Her response was
>this...."we call it Interstitial Cystitis."
>I read a little about the KCL test and I'm sure not looking forward to
>it....a positive test can be very painful. Has anyone had this test?
>
> Thanks....and I hope all of you are doing well!
>
>--
> Cindi

Hi Cindi. I just had this test done aprroximately one month ago. It is painful...BUT nothing compared to a cytescopy!! If you test positive for IC, they will inject medicine directly into your bladder...thats what my doc did. I am 4 hours away from this specialist, so I have an upcoming appt to sart the injections closer to my home. I am also on Elmiron 100mg 3x a day. The bladder injections can be done weekly...for me it only helped for 4-5 hours. I have heard it can take awhile. I'm also posting a few links where you can find some info....Feel free to contact me, at least u know...u do not suffer alone!!

http://www.ic-network.com/forum/ http://www.ic-network.com/handbook/

--
Love and Hugs, Jodee

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