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Re: Question about Endo and IC
From: anonymous@obgyn.net
Wed May 26 22:16:18 2004
Cindi,
I don't know if this will be of any help to you or not. But today I
actually went to a really great site about IC, maybe you have already
been to it, I don't know. It's http://www.ic-network.com If you look on the
left a little bit down there is a great forum you can go to! The forum
is really organized and nice! Maybe you won't get this in time since I
think you said your test is tomorrow, but if you do, good luck to you
and I hope it all goes well! Let me know how it goes! I need to go to a
doctor soon and check for it too, and I'm nervous about having the tests
and whatever else they do done too.
At Wed, 26 May 2004, Cindi wrote:
>
>Thanks Deb! I appreciate your quick response. I guess I'm lucky since I
>have little pain.....more discomfort than anything. I'm working through
>my fears regarding tomorrow. I just hope it all comes out negative!
>
>Take care and Thanks so much again!
>
>--
> Cindi
>
>At Wed, 26 May 2004, Deb wrote:
>>
>>At Wed, 26 May 2004, Cindi wrote:
>>>Hi All,
>>>
>>>Can anyone tell me what exactly is IC? Is it Endo of the bladder or
>>>what?
>>> I was diagnosed 2 months ago with Stage 1 Endo.
>>>I saw a urologist 2 days ago, hoping that during my upcoming
>>>hysterectomy (I'm 49 yrs old), he would tack my bladder up. During my
>>>first visit with him, he examined me internally and much to my surprise,
>>>when he felt my bladder, it hurt like the dickens. They also found a
>>>trace of blood in my urine. So, tomorrow I go in for a KCL test, then
>>>an xray the next day, and one more test next week sometime.
>>>While talking to the nurse at the urologists, I asked if any of these
>>>tests would show whether I have Endo on my bladder. Her response was
>>>this...."we call it Interstitial Cystitis."
>>>I read a little about the KCL test and I'm sure not looking forward to
>>>it....a positive test can be very painful. Has anyone had this test?
>>>
>>> Thanks....and I hope all of you are doing well!
>>>
>>>--
>>> Cindi
>>
>>Cindi, HI! I actully had the KCL test and truly it was nothing like the
>>internet or people say it is. It was hardly even uncomfortable for me.
>>I can honestly say please don't worry. Mine was positve and the pain
>>was much less then the pain level I experience from my endo. I actully
>>had a cystoscopy with hydrodistention done when I had my surgery 4/21/04
>>and then my Dr put me on Elmiron which so far for me has had no
>>side-effects at all. I had a great surgeon as well and he explained
>>everything to me and why I was feeling the pain from my bladder. I also
>>received the actual pictures of my bladder with the ulcers and areas
>>that were causing the pain. Hope all goes well with your tests. Deb )
>
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