Re: Question about Endo and IC
From: Cindi (anonymous@obgyn.net)
Wed May 26 20:42:46 2004
Thanks Deb! I appreciate your quick response. I guess I'm lucky since I
have little pain.....more discomfort than anything. I'm working through
my fears regarding tomorrow. I just hope it all comes out negative!
Take care and Thanks so much again!
--
Cindi
At Wed, 26 May 2004, Deb wrote:
>
>At Wed, 26 May 2004, Cindi wrote:
>>Hi All,
>>
>>Can anyone tell me what exactly is IC? Is it Endo of the bladder or
>>what?
>> I was diagnosed 2 months ago with Stage 1 Endo.
>>I saw a urologist 2 days ago, hoping that during my upcoming
>>hysterectomy (I'm 49 yrs old), he would tack my bladder up. During my
>>first visit with him, he examined me internally and much to my surprise,
>>when he felt my bladder, it hurt like the dickens. They also found a
>>trace of blood in my urine. So, tomorrow I go in for a KCL test, then
>>an xray the next day, and one more test next week sometime.
>>While talking to the nurse at the urologists, I asked if any of these
>>tests would show whether I have Endo on my bladder. Her response was
>>this...."we call it Interstitial Cystitis."
>>I read a little about the KCL test and I'm sure not looking forward to
>>it....a positive test can be very painful. Has anyone had this test?
>>
>> Thanks....and I hope all of you are doing well!
>>
>>--
>> Cindi
>
>Cindi, HI! I actully had the KCL test and truly it was nothing like the
>internet or people say it is. It was hardly even uncomfortable for me.
>I can honestly say please don't worry. Mine was positve and the pain
>was much less then the pain level I experience from my endo. I actully
>had a cystoscopy with hydrodistention done when I had my surgery 4/21/04
>and then my Dr put me on Elmiron which so far for me has had no
>side-effects at all. I had a great surgeon as well and he explained
>everything to me and why I was feeling the pain from my bladder. I also
>received the actual pictures of my bladder with the ulcers and areas
>that were causing the pain. Hope all goes well with your tests. Deb )
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