ENDO Messages for May, 2004: Re: Question about Endo and IC

Re: Question about Endo and IC

From: Deb (anonymous@obgyn.net)
Wed May 26 19:42:59 2004

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At Wed, 26 May 2004, Cindi wrote: >
>Hi All,
>
>Can anyone tell me what exactly is IC? Is it Endo of the bladder or
>what?
> I was diagnosed 2 months ago with Stage 1 Endo.
>I saw a urologist 2 days ago, hoping that during my upcoming
>hysterectomy (I'm 49 yrs old), he would tack my bladder up. During my
>first visit with him, he examined me internally and much to my surprise,
>when he felt my bladder, it hurt like the dickens. They also found a
>trace of blood in my urine. So, tomorrow I go in for a KCL test, then
>an xray the next day, and one more test next week sometime.
>While talking to the nurse at the urologists, I asked if any of these
>tests would show whether I have Endo on my bladder. Her response was
>this...."we call it Interstitial Cystitis."
>I read a little about the KCL test and I'm sure not looking forward to
>it....a positive test can be very painful. Has anyone had this test?
>
> Thanks....and I hope all of you are doing well!
>
>--
> Cindi

Cindi, HI! I actully had the KCL test and truly it was nothing like the internet or people say it is. It was hardly even uncomfortable for me. I can honestly say please don't worry. Mine was positve and the pain was much less then the pain level I experience from my endo. I actully had a cystoscopy with hydrodistention done when I had my surgery 4/21/04 and then my Dr put me on Elmiron which so far for me has had no side-effects at all. I had a great surgeon as well and he explained everything to me and why I was feeling the pain from my bladder. I also received the actual pictures of my bladder with the ulcers and areas that were causing the pain. Hope all goes well with your tests. Deb )

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