ENDO Messages for May, 2004: Re: Who has Stage 4 Endometriosis? Please respond

Re: Who has Stage 4 Endometriosis? Please respond

From: anonymous (anonymous@obgyn.net)
Wed May 26 18:43:41 2004

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In reply to: anonymous: "Who has Stage 4 Endometriosis? Please respond"

At Wed, 26 May 2004, anonymous wrote: >
>Hi all,
>
>Okay, I finally got more clarity (6 weeks post op) as to exactly what
>happened during my surgery. I'm wondering how many of you who are Stage
>4 have complete obliteration of the cul-de-sac and massive bowel
>adhesions. Have any of you had them sucessfully excised without the
>need for a hysterectomy? According to what I read, my left ovary was
>actually pulled out of the cul-de-sac and flipped over the round
>ligament (I think that's what holds the uterus in place). They could
>not complete the dissection beyond the lower uterine segment. Because
>of the severity of the adhesions, IVF may not even work for me. I may
>be able to conceive naturally from the left tube and ovary. Right ovary
>was resected and large cyst removed. My issue is I still feel a pain
>like something is tearing behind the vagina when we have sex. Also pain
>with bowel movements but who cares about that. I'm going to try an
>anesthetic gel (like the kind you use for gums) to see if maybe that
>numbs the pain enough so we can have sex.
>
>My doctors are completely against the idea of further surgery. I'm
>sending my records in to Atlanta and see what they say.
>
>This is so messed up. Why me? Why did it have to be me? My life was
>perfect.....

I don't have stage 4 but do have endo and am doing the lupron shots which for me have taken my pain away. Like you I felt angry, especially when I would see people having kids that shouldn't have them but after my pain went away and I could think clearer I realized how much worse my life could be.... Don't give up, keep your chin up and don't lose hope, you will find something that works for you!!!! In my prayers!! Stay strong!!!!! >
>Confused

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In reply to: anonymous: "Who has Stage 4 Endometriosis? Please respond"

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