ENDO Messages for May, 2004: Re: Crushed

Re: Crushed

From: Lori (anonymous@obgyn.net)
Sat May 22 12:53:56 2004

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Jennifer: "How long after laprosocpy"
Previous message: D.N.: "Re: Endo returning after hysterectomy?"
In reply to: anonymous: "Re: Crushed"

Hi, I am very sorry to hear of your trouble, unfortunatly it seems that the Drs. are getting very frustrated with this disease, as are all of us & the lack of compassion seems to be among a lot of them, I mean one time a Dr. said to me "poor Baby" sarcastically to me! Did you know that their is another way to treat endo? I never knew until October of 2003 that their was more hope than the medical route I had always heard of. It is not a lot of hype either as some think, a lot of women I talk to are actually feeling better going with this route, Natural progesterone cream is something you can research, along with many vitamins, some herbs like chaste tree berry & this sounds strange but some have found by eliminating wheat to be a major help, change of diet is very important also-the whole idea is to balance the hormones: less estrogen, which you probably know cause endo to grow. really it would take a while to write everything down about it, but do some research on the natural route,some things that do work besides the natural progesterone is fish oil, evening primrose oil, a good multivitamin, vitamin C, a liver cleanse, calcium magnesium & I do not mean just a lightweight approach to this route either, for it to work it has to be a combination of alot of all of this for usually a few months for it to start working. In my opinion only the best hope for endo right now is this route, but also combining it with a lap to remove the endo 1st, then supressing it in this way may work for others? Gosh the possiblility for gyno's & Naturopathic Dr's working together amiably what a thought of success!!!! God Bless Lori http://www.theendoclub.com At Sat, 22 May 2004, anonymous wrote: >
>At Wed, 24 Sep 2003, Nicky wrote:
>>
>>Hello everyone,
>>
>>I had a horrible thing happen to me yesterday and need some advice from
>>all of you if you don't mind.
>>
>>Last Tuesday I saw this new doctor for the first time, Dr. Tureck at
>>Penn University and he gave me some hope back. He is the ninth doctor
>>that I have seen but my first specialist. He seemed really nice,
>>knowledgable and concerned. My husband liked him too, and that is a
>>first. He told me that he would not offer any treatment plans or advice
>>until he has all of his data and test results. He scheduled an MRI
>>which was done on Monday.
>>Well, over the weekend I started throwing up blood from the painkillers
>>that I was taking that my regular PCM gave me. Dr. Tureck said to
>>continue with them until we had all of our information. On Monday I
>>called and left a message and yesterday I get this call back from one of
>>the Fellows that works in his office. I explained to him what happened
>>and that I stopped taking the percocete and needed a replacment for it.
>>Well, he went on to tell me after I gave him the list of drugs that we
>>had tried that I maybe beyond help, that endometriosis is a horrible
>>monster and that there is no CURE, I felt like saying really in the last
>>11 years that I have had that I did not know that. I think that most
>>people who havew had a battle with this knows that. Anyway he went on
>>to say that he was not sure what they could do as a specialist that my
>>normal GYN couldn't do. I was shocked and crying and growing angery by
>>the minute. My husband was sitting next to me as this was happening and
>>ask when this guy was going to take a breath, it was as if he had
>>started and was rolling down a hill and couldn't stop. He never said
>>one thing that was positive and when I said that he had just crushed any
>>hope that I had he said that this was the reality of this. He would
>>rather be honest as he said they give my false hope. Well, know I can't
>>sleep and I am mad and I am hearing what he said over and over. I don't
>>what to believe that there is nothing that they can do. I am not asking
>>them to cure something that they can not do but if their method is just
>>to crush any hopes what good are they doing for the emotional side of
>>this? I have never been told to give up until now. I have never thought
>>of giving up until last night.
>>What should I do?? What can I do??
>>
>>--
>>Nicky
>>
>Unfortunately, there are many Drs. who refer to themselves as endo
>specialists but only few really do excision surgery. There are only a
>few in the US. Excision is also not a cure, but studies show better and
>longer results for the endo sufferer. Some women state, they do not
>experience pain after excision after years of suffering and multiple
>surgeries. Most of the patients these excision sugeons treat are women
>with your same story with repeated surgeries and still suffering with
>pelvic pain. Most gyns perform Laser surgery, which why this fellow
>stated they cannot do much more then your gyn. Laser surgery removes
>the superficial layer of the endo leaving deep disease which is why many
>women keep having repeated surgeries and keep complaining of pain. Some
>of these endo specialists may see more endo patients and perform more
>endo surgeries, but their end results are not much differently then your
>normal gyn. They may be able to detect more different colors or areas
>of endo, but they are still leaving the deep disease behind. Endo is a
>difficult disease to treat for any Dr. and more difficult for the
>patient suffering. Good luck!

Next message: Jennifer: "How long after laprosocpy"
Previous message: D.N.: "Re: Endo returning after hysterectomy?"
In reply to: anonymous: "Re: Crushed"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: