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Re: CrushedFrom: anonymous (anonymous@obgyn.net)Sat May 22 05:51:34 2004
At Wed, 24 Sep 2003, Nicky wrote: > >Hello everyone, > >I had a horrible thing happen to me yesterday and need some advice from >all of you if you don't mind. > >Last Tuesday I saw this new doctor for the first time, Dr. Tureck at >Penn University and he gave me some hope back. He is the ninth doctor >that I have seen but my first specialist. He seemed really nice, >knowledgable and concerned. My husband liked him too, and that is a >first. He told me that he would not offer any treatment plans or advice >until he has all of his data and test results. He scheduled an MRI >which was done on Monday. >Well, over the weekend I started throwing up blood from the painkillers >that I was taking that my regular PCM gave me. Dr. Tureck said to >continue with them until we had all of our information. On Monday I >called and left a message and yesterday I get this call back from one of >the Fellows that works in his office. I explained to him what happened >and that I stopped taking the percocete and needed a replacment for it. >Well, he went on to tell me after I gave him the list of drugs that we >had tried that I maybe beyond help, that endometriosis is a horrible >monster and that there is no CURE, I felt like saying really in the last >11 years that I have had that I did not know that. I think that most >people who havew had a battle with this knows that. Anyway he went on >to say that he was not sure what they could do as a specialist that my >normal GYN couldn't do. I was shocked and crying and growing angery by >the minute. My husband was sitting next to me as this was happening and >ask when this guy was going to take a breath, it was as if he had >started and was rolling down a hill and couldn't stop. He never said >one thing that was positive and when I said that he had just crushed any >hope that I had he said that this was the reality of this. He would >rather be honest as he said they give my false hope. Well, know I can't >sleep and I am mad and I am hearing what he said over and over. I don't >what to believe that there is nothing that they can do. I am not asking >them to cure something that they can not do but if their method is just >to crush any hopes what good are they doing for the emotional side of >this? I have never been told to give up until now. I have never thought >of giving up until last night. >What should I do?? What can I do?? > >-- >Nicky > Unfortunately, there are many Drs. who refer to themselves as endo specialists but only few really do excision surgery. There are only a few in the US. Excision is also not a cure, but studies show better and longer results for the endo sufferer. Some women state, they do not experience pain after excision after years of suffering and multiple surgeries. Most of the patients these excision sugeons treat are women with your same story with repeated surgeries and still suffering with pelvic pain. Most gyns perform Laser surgery, which why this fellow stated they cannot do much more then your gyn. Laser surgery removes the superficial layer of the endo leaving deep disease which is why many women keep having repeated surgeries and keep complaining of pain. Some of these endo specialists may see more endo patients and perform more endo surgeries, but their end results are not much differently then your normal gyn. They may be able to detect more different colors or areas of endo, but they are still leaving the deep disease behind. Endo is a difficult disease to treat for any Dr. and more difficult for the patient suffering. Good luck!
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