Re: IUD for possible Endo?
From: Amy (anonymous@obgyn.net)
Wed May 19 11:35:53 2004
Thank you ladies so much for your input. I truly appreciate it. I've
decided to get a second opinion and have scheduled an appointment with a
Reproductive Endocrinologist for next Tuesday. This last week as been
unbearable and I'm looking forward to this dr's opinion!! Wish me luck!
--
Amy
At Mon, 17 May 2004, anonymous@obgyn.net wrote:
>
>I had an IUD too, not for Endo, but for birth control. It was
>INCREDIBLY painful putting it in. Cramped like you wouldn't believe,
>broke out into a cold sweat and thought I was going to pass out. I had
>continual pain for about 2 months when I couldn't tolerate it anymore
>and had it taken out, which was equally as painful (he had trouble
>finding it). I don't see how it would help with Endo as I don't think
>they have hormones in them anymore do they? And since Endo seems to grow
>frequently in scar tissue, I would think there would be a risk of Endo
>growing on any scars inside the uterus that the IUD might cause.
>
>I think, unfortunately, that your doctor doesn't know the first thing
>about Endo. "Normal" periods should not be as painful as the ones we
>have. The second thing that makes me think that your doctor is not very
>knowledgable or blowing you off, is she said "progesterone" is in your
>BC pills. It's not. It's "progestin" which is an artifical hormone
>which is not like progesteone at all. In fact, they have some very
>OPPOSITE effects. Check into some of the back issues here on natural
>progesterone and some of the other natural options that some of us have
>tried with some success. It may not cure Endo, but it could give you a
>good quality of life back.
>
>At Sun, 16 May 2004, Jude wrote:
>>
>>Hi Amy,
>>
>>I have tried the Mirena IUD to control pain and my advice is to tread
>>with caution. I was told it would be painful getting the IUD put in and
>>it was more painful than I had anticipated. I was also told that 5% of
>>women do not tolerate IUD's and unfortunately I happened to be one of
>>them. I was already in chronic pain and the IUD caused more. I tried
>>very hard to tolerate it to the point of taking 400mg of celebrex and
>>4gms of paracetemol a day to calm it down. It turned out to be a very
>>expensive and painful experiment to manage endo.
>>
>>I would also encourage you to seek a second opinion, it is not normal to
>>have such painful periods. Please seek the advice of a gynaecologist
>>who specialises in treating endometriosis.
>>
>>Kind regards, Jude.
>>
>>At Fri, 14 May 2004, Amy wrote:
>>>
>>>Hello everyone! I’m new to the group and I am so thankful to have found
>>>you!. I’m 31 and have never been diagnosed with endometriosis but after
>>>reading your post I think it’s possibly what I have. For the last 4-5
>>>years I have had severe pain associated with my periods. The pain has
>>>gotten progressively worse over the last couple years and lately has
>>>been unbearable (can’t walk, can’t sleep, nauseated, ect.). I recently
>>>saw my doctor for my yearly exam and for the umpteenth time with a smile
>>>I was told “Some women just have painful periods. You’re normal!” I
>>>don’t feel normal!! At my last visit (4 weeks ago) she switched my birth
>>>control from Aleese to the Ortho Evra patch. I actually had stopped
>>>taking the Aleese prior to my visit because it was making me sick (she
>>>said it was the Progesterone). The patch hasn’t been agreeing with my
>>>system but I know I need to give it some time. I called the office
>>>today to let them know the problems I was having with the patch and to
>>>also get a prescript refill for my pain meds. Even though I’m using the
>>>patch back to back now is the time when I would normally have my period
>>>and I have the same unbelievable pain……maybe even worse. They told me
>>>to give the patch some time to work (which I knew they would) but also
>>>suggested that if the patch doesn’t work she could put in an IUD. Has
>>>anyone else had this advice? Did it work? I had a tubal ligation in 1998
>>>so I only take BC to help control the pain. Any advice would be
>>>appreciated! Thanks!
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