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Re: Fibromyalgia and endo?
From: anonymous (anonymous@obgyn.net)
Thu May 13 15:13:22 2004
Hey LisaK..
Yes.. I had an active life before lap. It was my last lap I started
having fibro problems. around 2months after.. I started experiencing
nerve pains.. it was constant.. nagging on hand, arm and little
shoulders.. the acupuncturist help w/ the nagging pain for a period..
but less than a year later.. I started having more problems (gastro,
female problems - endo is 1 of them, gastro, headaches/migraine,
hormone.. etc..) I stop going to the acupuncturist because it didnt
help as much after that and also I became allergic to where the needles
were inserted (always the same spot).
I take ambien to help w/ sleep. I was on neurontin but stop after
6months.. You should look into Bextra & klonapin. I didnt have a staph
infection but I got Shingles.
take good care..
~mysti
At Thu, 13 May 2004, Lisa wrote:
>
>Hi Mysti,
>Thank you for your reply. I have spoken with a Chinese acupuncture and
>herbilist and I will be meeting with him to start a treatment program.
>My doctor has not put me on antidepressents. I am taking pain meds if
>needed during the day but I take zanaflex at night before bed. That is
>the only thing I have tried that would help me sleep and control the
>pain. They had me try neurontin and pamelor, but those did not help me.
>When you say you have nerve pain, is it constant? Did you also develope
>a staph infection? Before the lap you had did you have a very active
>life? Thank you again for the reply.
>Prayers of health,
>Lisak
>
>At Wed, 12 May 2004, Mysti wrote:
>>
>>Hi LisaK..
>>Im sorry to hear about you having endo & fibro.. I too had the same
>>thing happened.. Shortly(2months) after my last lap, I started
>>experiencing joint & nerve pains.. evidentially it effect every part of
>>me.. not just pains but more female problems, gastro, headaches,
>>hormone dysfunction.. etc..
>>I dont know what the connection and cant give you answers.. I have seen
>>more than 8 Drs trying to get answers. You would think I would be cured
>>by now..
>>Its very important to have a Dr that believe in you and willing to try..
>>I did see an acupuncturist for the 1st 6months. It did ease some pains
>>before I got worst.. Im currently seeing a neurologist and we're
>>experimenting with different things..
>>My personal advise is to make sure you get enough sleep & watch out for
>>depression.. Im sure anti-depression meds are thrown at you left &
>>right.. just becareful with them..
>>
>>Take care
>>*HUGS*
>>if you have any questions, email me mysti@iname.com. I'll share what I
>>know..
>>
>>At Wed, 12 May 2004, Lisa wrote:
>>>
>>>Hi,
>>>I am an endo patient and the last lap I had was in dec. 03 and I
>>>developed a staph infection shortly after the lap. It took a little
>>>over a month to get the infection under control but I eventually
>>>recovered. However, I have had terrible joint pain and I feel like I
>>>have a fever(keep checking, but no fever) all the time. I have been
>>>seen by a few docs and everyone runs tons of blood work and other tests
>>>but nothing has turned up! They are treating me for fibromyalgia but I
>>>really feel like they might be missing something. I was very active up
>>>until my lap in dec. I am a martial artist and would train several
>>>hours a week! And now I can barely get out of bed some days!!!! If
>>>anyone has advice on what steps I should take I would really appreciate
>>>it. I am seeing a Rhuematologist and he is open to my suggestions. I
>>>just do not know what to do next!
>>>Prayers of health to all,
>>>LisaK
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