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Re: What to do????
From: Amy (anonymous@obgyn.net)
Thu May 6 05:12:40 2004
Thank you for your reply. I'm wondering... If I am infertile and I am
going to be in pain... Why wouldn't I want to try a hysterectomy to
cure at least SOME of the pain? I really am not aware of the risks that
I am taking by having a hysterectomy. I do, however know that keeping
the Endo in my body is putting me at a greater risk for cancer. I feel
most ALL of my pain coming from my ovary area.. nto my intestines or
kidneys (that are also covered with Endo). At this point, I am thinking
that I am a good canidate to have a hysterectomy, I just have to find a
specialist that will have a bit different opinion than my Dr. I am just
SO FED UP with this pain... I couldn't even come to work yesterday.
At Mon, 3 May 2004, Jude wrote:
>
>Dear Amy,
>
>I understand from your post that you have done extensive research on
>endo. So without sounding insulting, would it be worth your while
>getting a second opinion? I also wondered if there is a local endo
>support group who can put you in touch with a specialist in your area?
>(One who is known as a good specialist by other women and specialises in
>treating endometriosis).
>
>Your post really touched me because I have felt the same in that pain
>returns so soon after having surgery too. I worked out the other day
>that I average surgery every nine months. The best advice I ever got
>was from a woman who educates others about endo. Her advice was to
>"listen to your body". If you're in pain again there has got to be a
>reason why. Your instinct that something is not right is valuable, and
>of course you are the best expert on you - how is anyone else going to
>know how you actually feel, emotionally and physically?
>
>I was once told by a gyn that there was nothing more that could be done
>and I would have to put up with the pain. I refused to accept this
>advice and sought a second opinion. Since getting a second opinion I
>have been able to manage my endo with surgery, diet, medication and pain
>relievers. The reality for me is that this is probably the best I can
>hope for, I can manage the problem but I can't fully solve it. Other
>women I have talked to who have had a hysterectomy say they have never
>looked back, and on the other hand I see regualr posts on endo sites
>where women report the endo coming back despite a hysterctomy. The
>hysterectomy dilemma is something that comes up often for me too. It is
>all very confusing and distressing, especially when you are right in the
>thick of it, in pain and sick of feeling sick and tired. I hope that
>your find the support you are seeking and someone to help you through
>this time.
>
>--
>Jude.
>
>At Mon, 3 May 2004, Amy wrote:
>>
>>Hello,
>>
>>I have been dealing with endometriosis now for 13 years now and have
>>been through Lupron therapy twice, 2 aggresive laproscopies and 1
>>pregnancy (I am 25). My last laproscopy was less than 2 months ago and
>>I am in pain again. My Dr. has told me that this is a pain that I am
>>going to have to accept (for the rest of my life) because there is
>>nothing to help it. I have done extensive research on Endometriosis and
>>found that a hysterectomy is a cure about 90% of the time. I am unable
>>to concieve any more children and I am tired of dealing with the pain.
>>Does anyone have any suggestions or know any specialists in Florida???
>>
>>Any advise would help.
>>Thank you!
>>Amy
>
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