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Re: mass of possible recurrent endo after hysterectomy and oophorectomy?
From: anonymous@obgyn.net
Fri Apr 30 23:29:36 2004
Thanks for the reply DN...I have a few more questions now that I have
seen a specialist for my mass. The specialist believes that this is
either endo or ORS and says that surgery would be a last resort to
treating this mass as the position would lead to a very complicated
surgery in which the bowel and bladder would need to be resected.
Instead, she wants me to go off the estrogen that I have been taking
since the hysterectomy, and begin taking progesterone instead, to see if
the mass shrinks or at least stays the same. She also wants to do a
CA-125 scan of my blood to make sure cancer is not present although it
is highly doubtful - and the radialogist believes it is benign from the
ultrasound. What side effects should I be concerned about when taking
progesterone? If it is ORS would the ovary tissue be negatively affected
by the Megace(Progesterone)? Also, I experienced severe post-partum
depression after my last child - do you know of any danger of this
coming back as a result from switching from estrogen to progesterone?
Thanks. Sue.
At Tue, 27 Apr 2004, D.N. wrote:
>
>Hi Sue,
>
>Unfortunately, this can happen. It is possible that your doctor was not
>able to remove your ovaries completely intact. If that happened, you
>can have ORS (ovarian remnant syndrome.) This is what I have and I
>continued to have endo pain cyclically - like a period. Thankfully, I
>am very perimenopausal now and that is happening less. My endo pain has
>been on a permanently swollen lymph node near the sigmoid colon area -
>which happens to be where they found most of my endo. I did have two
>surgeries- one was a hyst with left ovary removed - right one was fine
>at the time. Then a year and a half later, they tried to remove my
>right one because of an endometrioma and they didn't get it all out. I
>didn't find out until about 4 months after the surgery when I started to
>ovulate again. I should also say that my remnant was not visible on
>ultrasound at first, only cysts. As time went on, the remnant was
>visible. I have the feeling that it did grow a bit.
>
>Have you had your FSH and estradiol levels checked recently? Are you on
>HRT? If you are, it seems like getting off that would be the first step
>to see if it makes a difference and to have your blood levels checked.
>They may want to try and treat your symptoms medically with lupron. I
>was afraid to try lupron because I saw it as just a temporary fix at
>best with too many side-effects. Personally, if I were you, find a
>doctor that treats this endo, if you are lucky to have one in your area.
>If you search this site under ovarian remnant syndrome or endo after a
>hysterectomy, you will find many of my posts which show more of my
>history that I have written here. Please let me know if you have any
>questions.
>
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