Re: Lupron Side effects
From: Vicky (anonymous@obgyn.net)
Fri Apr 30 14:04:43 2004
At Tue, 27 Apr 2004, vicxcol@hotmail.com:
I have undergone a three month course of Prostap (the commercial UK name
for Lupron)injections to treat my 4 year history of endrometriosis and
within such a short time notice the drastic side effects that the
hormone treatment caused.
This is a story of good and bad....
The bad= The injection caused bone density had affected my hip (causing
me to fall like an old person at the ripe old age of 23). Although I
was unaffected by hot sweats and the other common side effects the
migraines I experienced were bordering on intolerable. I felt genuinely
unwell for the duration of the treatment.
The good= The injections ended six torturous months of heavy bleeding.
But most amazingly by some fluke I managed to conceive shortly after the
third injection and I am now 4 and a half months pregnant.
I am hoping the pregnancy will re-align my hormones back to what they
should be and counterbalance any long term damage the drug may have done
in such a short time. What worries me is what little is known about the
drug's effect on the body long term becuase it is a hormone that will
effect different people in different ways. So hurray for this site as I
would be lost without the advice of so many long suffering women who
research, helping and sharing their knowledge of the treatments- they
fill in the gaps that doctors fail to do.
>At Tue, 27 Apr 2004, anonymous wrote:
>>To answer your question from my opinion only...... yes it scares me to have just startd taking lupron but I think the majority of us have done are homework and are aware of the risks. I for one was givin the option of lupron or a hysterectomy and at 27 and no kids I went for the lupron. I also beleive that the effects one has may not be the same as others have. Everything has risks and side effects and we didn't choose this diesease so we take chances to get the results we have been searching for. Again, this is only my personal opinion of the matter. To be honest I had my first shot before I found this site and am so glad I didn't read all of these posts or I would have been terrified. Most times you only hear the bad because you are looking for support in the hard times. You will find a lot of happy endings from lupron but I beleive it all depends on your body and everyone is different. What works for one might not for others.
>
>>I was wondering if all the women on lupron are ever scared and/or
>>concerned for the health after Lupron. I have read much about the drug
>>and have a very close freind with endo. who took lupron. She took it 5
>>years ago and is still experiencing some side effects, and they will
>>probably never go away. Aren't you all worried that even though lupron
>>is treating endo now you will never loose any or some of the side
>>effects? Aren't you at all worried that you may be doing more harm than
>>good? Shutting down your pititary gland is a very big thing and doesn't
>>always return to normal function, doesn't that worry you. I have read a
>>few post were young girls are on it and it scares me to think about what
>>they are putting there bodies through at such a young age. All that
>>stress at such a young age, especially when your body hasn't even fullly
>>matured yet, isn't that scary? And no one truly knows what the longer
>>term side effects are, Lupron was only released in the late 80's early
>>90's. I have read that some women have lots there short term memory,
>>there hair, bone density even after the add back, and that is just to
>>name a few. It just seems to me that it is a very risky drug,
>>especially since it was originaly made for men.
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