ENDO Messages for April, 2004: Re: Endo pain after orgasm in my sleep!

Re: Endo pain after orgasm in my sleep!

From: anonymous@obgyn.net
Fri Apr 30 09:38:18 2004

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At Sun, 2 Mar 2003, anonymous wrote: >
>Your welcome and good luck. :)
>
>At Sat, 1 Mar 2003, vanessa wrote:
>>
>>Sorry to take up time/ space on this to say thank you, but THANK YOU for
>>responding. Myfirst time writing in, and so happy to hear back and so
>>soon!
>>Thank you and I am going to begin to tackle this problem and well, if it
>>is endo I will probably write more!
>>Thanks, I'm happy to have found this.
>>
>>--
>>Vanessa
>>
>>At Sat, 1 Mar 2003, anonymous wrote:
>>>
>>>Yes, this happened to me too. I have even thrown up from the pain. I
>>>had fibroids and have endo. You probably should have your doctor do a
>>>laparscopy to check for endo. Talk to your doctor, he/she will
>>>understand.
>>>
>>>At Sat, 1 Mar 2003, anonymous wrote:
>>>>
>>>>This person wrote awhile ago, but if anyone out there can relate to
>>>>this, please write back. I experience this. I also have pain all
>>>>through the month after orgasm. Awake, sleeping and it is excruciating
>>>>from anywhere from 20-40 minutes. I really need help- I have tried to
>>>>search the internet- no luck except for this. I have not been tested
>>>>for endo. I have normal periods, well, severe pms and pain up to 2
>>>>weeks before, and get very bloated and gaseous. I am 28 yrs old and
>>>>have had this orgasm pain for years. I find it pretty difficult to talk
>>>>to doctors about it. They seem to say it's about uncomfortable sexual
>>>>positions, or back ache, and then they thought it was irritable bowel. I
>>>>am at my wits end. It happend while I'm sleeping! Waking up to intense
>>>>pain-- the pain always makes me squirm because it's so intense I can't
>>>>sit still- I end up on the foor usually practically crying. It has
>>>>gotten so severe I would bet childbirth isn't much more painful. The
>>>>pain is exhausting. After the pain, I am completely fine. It's nuts. A
>>>>dr. wanted to put me on the pill and i said no. I have small fibroids
>>>>--- so small, they only found them when I asked for an ultrsound. They
>>>>said to small to cause this pain.
>>>>I think I need to go for a laproscopy and find out. The thing is, I
>>>>feel like this is the only symptom I have that is truly endo-like, but I
>>>>guess there aren't always symptoms.
>>>>Does anyone out there think this orgasm pain can be endo?
>>>>I don't know what else it can be. I am a healthy 28 year old. Do you
>>>>think I should get the laproscopy?
>>>>Please write if you can tell me any shared experiences. Thank you.
>>>>
>>>>At Sun, 6 May 2001, anonymous wrote:
>>>>>
>>>>>I'm writing for the first time hoping someone else out there may have
>>>>>experienced something similar. My pain with endo in excruciating after
>>>>>orgasm. Since the onset of this disease 9 years ago I have had orgasms
>>>>>in my sleep resulting in severe pain and a sleepless night. The orgasms
>>>>>always occur around day 23 of my cycle. Recently we've been trying to
>>>>>concieve and every time I feel the egg has implanted, I get this orgasm
>>>>>in my sleep followed by severe pain and the next few days my pregnancy
>>>>>symptoms are gone, and I get my period. I've had surgery, Lupron, and
>>>>>the clomid, IUI ordeal. I'm sure we concieved this month but I had an
>>>>>orgasm in my sleep two nights ago. I'll have to wait and see. So
>>>>>frustrating and sooo weird. It's like this disease doesn't want me to
>>>>>get pregnant, like it has a mind of its own. Creepy. Any suggestions
>>>>>anyone?
>>

-- Thank you Lord!

At least I know I am not the only female who orgasm in my sleep only and then be racked with excrutiating pain for 20 minutes...then it disappears like it never happens. Toward the end I swear it feels like my cervix is opening up. What in God's name is this??? Some one please help. It ONLY happens after I ovulate 2 weeks before my actual cycle (bleed) after I bleed it doesn't come back until the next luteal phase. It can happen 3,4,5,6 times a cycle. I try to avoid orgasm with Husband until I know I am in the clear.

How do you know this is causing you to miscarry? Do you have any children?

Please write back-I just had my 1st IVF cycle-I woke up in pain three times (one was not as bad) but I hope it won't affect my IVF cycle/pregnancy.

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