ENDO Messages for April, 2004: Re: lower back/abdominal pain after climax

Re: lower back/abdominal pain after climax

From: Denise (anonymous@obgyn.net)
Thu Apr 29 12:13:42 2004

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In reply to: Jennifer: "lower back/abdominal pain after climax"

Hi, Jennifer,

The ladies in this forum have had a lot of experience with endo, including me. I was diagnosed with endo in 1987. I am now 36 and have had a few laparoscopies and continue with pain from the endo.

Without knowing your doctor, I hate to say this, but if he truly meant that you will only have pain when you are bleeding, then BY ALL MEANS go see another doctor, preferably an endo specialist. I have done a lot of research in trying to find a specialist near me and in the process have on file names of doctors that I came across in other areas, from credible resources. If you'd like, please email me at dbwalker@adelphia.net and I will be glad to send you what I have. You can also check out Yahoo group forums for EndoDocs. After you become a member, which is free and just a matter of submitting an email address, you can read what members have posted on endo specialists and where to find them. There are MANY resources and I will be glad to share them with you.

The continual birth control pill method is an option that doctors try. However, it works better after surgery if all the endo found is removed. In some women, BCP do not do the trick. It's a trial and error process to find the right pill for each patient to begin with and then prolonged use thereafter. If you are having pain with intercourse, you cannot continue to "tough it out" with your current doctor.

I have pain with intercourse frequently. My endo was found in the cul-de-sac area and uterine ligaments. I have pain in my lower back, tailbone, and lower hips at varying degrees throughout the month. I am hoping to have microsurgery this summer to remove the endo. I have to jump through hoops with my insurance so it is a long process for me at this point.

I never recommend to anyone to change doctors. But in your case, please do. One, he didn't remove all of the endo (first clue as to his expertise of endo...granted there are a select group of physicians that can do this well). Second, he doesn't apparently know the nature of endo and the pain involved at different times of the month. Endo responds to hormone changes so you can have pain, and probably will, throughout the month and not just during your period.

You are too young to not have better care. Don't waste your twenties in pain. It is an ongoing battle with endo but you can definitely have better care than you have right now.

Take care, Denise

At Wed, 28 Apr 2004, Jennifer wrote: >
>Hello, I'm 24 years and and was only diagnosed with endo this past
>December 2003 after surgery. (I have had problems almost since the
>onset of my first period 12/13yrs of age)
>Unfortunately during my surgery they were unable to remove my endo
>because it is mostly located behind my womb and they were unable to lift
>my womb to get to it. So, now I am on my birth control Non stop in
>order to prevent my period from occurring. This is to stop the pain as
>well as to "convince" my body that it is pregnant in order to stop my
>cycle. My GYN says that I must be period free for a year if this
>process is going to work.
>
>Anyway, the reason I am posting this message is because I have noticed
>that after intercourse I tend to feel an instant pain in my abdomen and
>lower back areas (also when i was experiencing the most pain during
>periods, it was in my lower back areas). I do experience some pain
>during intercourse, but nothing compared to after I climax. It's a
>constant, cramp-like pain that I get and it sometimes lasts for hours
>afterwards..
>
>I suppose my question is whether or not this should be an additional
>concern or just a sympton that I am going to have to live with for
>awhile.
>
>My GYN always insists to me that I should ONLY have pain if I am
>bleeding...so I have been a bit confused. (especially following a time
>i went to the ER because I was experiencing terrible cramps in my
>abdomen all week and I was unable to sleep...the doctors at the er said
>one thing and my gyn just laughed and said, that's impossible...)
>
>I have read a lot about endo and have never read anything that mentions
>pain only with bleeding. So if anyone can help me out here, I'd greatly
>appreciate it.
>
>thanks

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