ENDO Messages for April, 2004: Re: A Cure for Endo

Re: A Cure for Endo - We're with you Dene

From: anonymous@obgyn.net
Tue Apr 27 18:56:43 2004

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At Tue, 27 Apr 2004, anonymous wrote: >
>I think that including this in health education class making people
>aware of the disease is a great idea. However if symptoms are not taken
>seriously by a doctor its hard to get help especially while being a
>teen. Every time I would go to the dr. and complain about pain they
>told me it was normal. I guess it just gets drilled in so much that
>nothing is wrong that you have to believe it. I never thought to
>myself, if this is normal why am I the only girl that has to leave in
>the middle of every class to go throw up in the bathroom (Sorry to much
>info)? Until this year when I ended up in the ER 4 times I was like THIS
>CAN’T be normal!
>
>Anyway I am still not diagnosed with endo, my dr. doesn’t want to do a
>lap although I have all the symptoms, and I have not yet found a
>specialist in the area. I’m on continues BC and I hate it because I
>have gained about 15 lbs since I started, can anyone relate to this? It
>just seems like no one will take this seriously and if more people new
>about the disease maybe more Drs would listen especially to young women.
>Sorry this turned out so long
>any advice on what to do would be greatly appreciated!
>
>Wishing you all pain free days!
>Karen
>

Hi all. I agree that there is a shocking lack of awareness out there among GPs and even the specialists we are relying on to help us with this problem. It took 11 years for my (male!) doctor to refer me to a gyno (from when I first got my period at 15), even though I had all the classic symptoms of endo. I'm now 28, and still haven't got satisfactory answers, even though I now have a diagnosis and know I'm not going mad.

I am from New Zealand, and there are some wonderful women here (from the NZ Endometriosis Foundation) who have started up an education program for our young women in schools, to teach them what is normal and what isn't, and what the signs of endo are. It isn't available at all schools yet, but many girls and even their teachers have now been able to get an accurate diagnosis of endo. I only wish that such a program existed when I went through school myself.

I am no longer worried or embarrassed about talking about endo. If my male colleagues ask me how I am and I am having a bad day I tell them, and I tell them why. We need more open discussion about it to educate those around us. I don't know how the education system works in America, but why can't we ask our local schools if we can give a talk to the girls (and boys!) about Endo? You could wait a long time to get an official program up and running in your area, but even if you only help one young women to get an early diagnosis, you will have achieved something worthwhile. It is kind of like the environmental viewpoint, you have to start in your own back yard!

Godbless, Georgie

Next message: Georgie: "Problems with bleeding while on the continuous BC pill"
Previous message: Dene: "Re: My daughter has endometriosis and they want her on lupron"
In reply to: anonymous: "Re: A Cure for Endo - We're with you Dene"
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