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Re: A Cure for Endo - We're with you Dene

From: anonymous (anonymous@obgyn.net)
Tue Apr 27 14:52:15 2004

I think that including this in health education class making people aware of the disease is a great idea. However if symptoms are not taken seriously by a doctor its hard to get help especially while being a teen. Every time I would go to the dr. and complain about pain they told me it was normal. I guess it just gets drilled in so much that nothing is wrong that you have to believe it. I never thought to myself, if this is normal why am I the only girl that has to leave in the middle of every class to go throw up in the bathroom (Sorry to much info)? Until this year when I ended up in the ER 4 times I was like THIS CAN’T be normal!

Anyway I am still not diagnosed with endo, my dr. doesn’t want to do a lap although I have all the symptoms, and I have not yet found a specialist in the area. I’m on continues BC and I hate it because I have gained about 15 lbs since I started, can anyone relate to this? It just seems like no one will take this seriously and if more people new about the disease maybe more Drs would listen especially to young women. Sorry this turned out so long any advice on what to do would be greatly appreciated!

Wishing you all pain free days! Karen

At Tue, 27 Apr 2004, anonymous@obgyn.net wrote: >
>Great idea, i do think we need to build more awareness, finding a cure
>would be great but just awareness about it would i think be a great leap
>forward. Most women on having pain during menses are still told to grin
>it and bear it. That just makes a bad situation worse. Have u not all
>wondered that when u felt a diference in ur monthly cycle/bowel/bloating
>etc and talked to ur doctor about it someone had suggested this so it
>could have been stopped before it developed to a painful stage????
>I started with major symptoms about 3-4 years back and although had 2
>miscarriages and painful bowel movements, horrendous pain during menses,
>bloating etc all i was told was to take a painkiller and its something
>women go through. And imagine there were women who had suffered and
>were being treated for some years about it while for us the disease was
>advancing coz of lack of awareness!. (I understand detection was hard
>but it seems few docs are suggestive of its existence and do little to
>investigate: Prime reason being women have weird symptoms during/coz of
>menses so they deal with us on a mental level rather than see the
>physical symptoms). After reading the horror stories where it goes
>undetected for 10- 20 yrs i feel very lucky and thankful.
>
>Why don't normal Gynae's have awareess about it????for faster detection.
>Why not include this as part of menses education while we are teanagers,
>so that we know what to ask our gynae's about?? I feel had i the
>slightest indication that there was a medical condition rather than it
>being a monthly thing i would not be in the pain i am in today. There
>was a reason for the miscarriages and i was left to wonder what my body
>had done to reject my own babies.
>

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