ENDO Messages for April, 2004: Re: mass of possible recurrent endo after hysterectomy and oophorectomy?

Re: mass of possible recurrent endo after hysterectomy and oophorectomy?

From: D.N. (anonymous@obgyn.net)
Tue Apr 27 10:20:08 2004

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: D.N.: "Re: surgery on Thursday"
Previous message: bkemnitz: "Re: Anyone have/had appendix problems w/ endometriosis?"
In reply to: sue: "mass of possible recurrent endo after hysterectomy and oophorectomy?"
Next in thread: anonymous@obgyn.net: "Re: mass of possible recurrent endo after hysterectomy and oophorectomy?"
Reply: anonymous@obgyn.net: "Re: mass of possible recurrent endo after hysterectomy and oophorectomy?"

Hi Sue,

Unfortunately, this can happen. It is possible that your doctor was not able to remove your ovaries completely intact. If that happened, you can have ORS (ovarian remnant syndrome.) This is what I have and I continued to have endo pain cyclically - like a period. Thankfully, I am very perimenopausal now and that is happening less. My endo pain has been on a permanently swollen lymph node near the sigmoid colon area - which happens to be where they found most of my endo. I did have two surgeries- one was a hyst with left ovary removed - right one was fine at the time. Then a year and a half later, they tried to remove my right one because of an endometrioma and they didn't get it all out. I didn't find out until about 4 months after the surgery when I started to ovulate again. I should also say that my remnant was not visible on ultrasound at first, only cysts. As time went on, the remnant was visible. I have the feeling that it did grow a bit.

Have you had your FSH and estradiol levels checked recently? Are you on HRT? If you are, it seems like getting off that would be the first step to see if it makes a difference and to have your blood levels checked. They may want to try and treat your symptoms medically with lupron. I was afraid to try lupron because I saw it as just a temporary fix at best with too many side-effects. Personally, if I were you, find a doctor that treats this endo, if you are lucky to have one in your area. If you search this site under ovarian remnant syndrome or endo after a hysterectomy, you will find many of my posts which show more of my history that I have written here. Please let me know if you have any questions.

Best wishes, D.N.

At Mon, 26 Apr 2004, sue wrote: >
>I had a hysterectomy with both ovaries removed at age 43 for the
>treatment of large endometriomas and uterine fibroids. This surgery was
>deemed emergency because my physician was afraid that it was ovarian
>cancer and said that it had developed within a month - but it turned out
>to be endo. Now 4.5 years later a routine exam by my physician detected
>a mass, and a sonogram revealed a mass roughly the size of an ovary on
>the top of the vaginal cuff. My doctor says that they haven't seen this
>before (the return of a mass of endometriosis after hyster and
>oopherectomy, and also said my endo was the most severe case that they
>had treated). Is this possible for endo to return like a mass after
>oopherectomy and hysterectomy, if not what could it be, and should i see
>a specialist to have this treated? Thank-you.

Next message: D.N.: "Re: surgery on Thursday"
Previous message: bkemnitz: "Re: Anyone have/had appendix problems w/ endometriosis?"
In reply to: sue: "mass of possible recurrent endo after hysterectomy and oophorectomy?"
Next in thread: anonymous@obgyn.net: "Re: mass of possible recurrent endo after hysterectomy and oophorectomy?"
Reply: anonymous@obgyn.net: "Re: mass of possible recurrent endo after hysterectomy and oophorectomy?"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: