ENDO Messages for April, 2004: Re: A Cure for Endo

Re: A Cure for Endo - We're with you Dene

From: caryn (anonymous@obgyn.net)
Tue Apr 27 09:56:00 2004

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At Tue, 27 Apr 2004, Endo wrote: >
>I'm sort of responding to Dene's message. What are doctors, researchers
>and legislators doing to find a cure or better therapies for endo? When
>people ask me what's wrong with me, I dont even know what to say b/c
>they never heard of the disease and I'm getting tired of explaining it,
>so I dont. In a country where technology has surpassed human
>imagination with cloning and ovary transplants and such, you would think
>someone, somebody, would have bothered to help women in pain, women who
>have resorted to getting hysterectomies and one, two, sometimes ten
>painful surgeries in search of relief. I understand there was a march
>in washington several years ago for endometriosis. I also understand
>that Daisy Fuentes is a spokeswoman for endometriosis (although I havent
>seen her speak and have no idea what she's done). What can we do to
>help ourselves? Should we write to congress people? Organize another
>march to bring awareness? I called the endometriosis association
>offering/volunteering my assistance and I have not heard a peep from
>them. Where can we funnel our energies toward change?

I couldn't agree with you more!!!!!! We need to do something to be heard to show awearness about the disease. Not enough people(women) know about endometriosis and it should be talked about just as much as breast cancer! I try my hardest to educate everyone I know about the disease but there has to be more we can do than just talk about it. We need to be heard by EVERYONE!!! We need to share our stories so that people can truly understand what it is that we go through every day of our lives! We have the power to change things!! God bless you all

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