ENDO Messages for April, 2004: Re: A Cure for Endo

Re: A Cure for Endo - We're with you Dene

From: anonymous@obgyn.net
Tue Apr 27 09:05:39 2004

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Great idea, i do think we need to build more awareness, finding a cure would be great but just awareness about it would i think be a great leap forward. Most women on having pain during menses are still told to grin it and bear it. That just makes a bad situation worse. Have u not all wondered that when u felt a diference in ur monthly cycle/bowel/bloating etc and talked to ur doctor about it someone had suggested this so it could have been stopped before it developed to a painful stage???? I started with major symptoms about 3-4 years back and although had 2 miscarriages and painful bowel movements, horrendous pain during menses, bloating etc all i was told was to take a painkiller and its something women go through. And imagine there were women who had suffered and were being treated for some years about it while for us the disease was advancing coz of lack of awareness!. (I understand detection was hard but it seems few docs are suggestive of its existence and do little to investigate: Prime reason being women have weird symptoms during/coz of menses so they deal with us on a mental level rather than see the physical symptoms). After reading the horror stories where it goes undetected for 10- 20 yrs i feel very lucky and thankful.

Why don't normal Gynae's have awareess about it????for faster detection. Why not include this as part of menses education while we are teanagers, so that we know what to ask our gynae's about?? I feel had i the slightest indication that there was a medical condition rather than it being a monthly thing i would not be in the pain i am in today. There was a reason for the miscarriages and i was left to wonder what my body had done to reject my own babies.

Apr

At Tue, 27 Apr 2004, Endo wrote: >
>I'm sort of responding to Dene's message. What are doctors, researchers
>and legislators doing to find a cure or better therapies for endo? When
>people ask me what's wrong with me, I dont even know what to say b/c
>they never heard of the disease and I'm getting tired of explaining it,
>so I dont. In a country where technology has surpassed human
>imagination with cloning and ovary transplants and such, you would think
>someone, somebody, would have bothered to help women in pain, women who
>have resorted to getting hysterectomies and one, two, sometimes ten
>painful surgeries in search of relief. I understand there was a march
>in washington several years ago for endometriosis. I also understand
>that Daisy Fuentes is a spokeswoman for endometriosis (although I havent
>seen her speak and have no idea what she's done). What can we do to
>help ourselves? Should we write to congress people? Organize another
>march to bring awareness? I called the endometriosis association
>offering/volunteering my assistance and I have not heard a peep from
>them. Where can we funnel our energies toward change?

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