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A Cure for Endo - We're with you DeneFrom: Endo (anonymous@obgyn.net)Tue Apr 27 06:57:35 2004
I'm sort of responding to Dene's message. What are doctors, researchers and legislators doing to find a cure or better therapies for endo? When people ask me what's wrong with me, I dont even know what to say b/c they never heard of the disease and I'm getting tired of explaining it, so I dont. In a country where technology has surpassed human imagination with cloning and ovary transplants and such, you would think someone, somebody, would have bothered to help women in pain, women who have resorted to getting hysterectomies and one, two, sometimes ten painful surgeries in search of relief. I understand there was a march in washington several years ago for endometriosis. I also understand that Daisy Fuentes is a spokeswoman for endometriosis (although I havent seen her speak and have no idea what she's done). What can we do to help ourselves? Should we write to congress people? Organize another march to bring awareness? I called the endometriosis association offering/volunteering my assistance and I have not heard a peep from them. Where can we funnel our energies toward change?
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