Re: catamenial pneumothorax
From: Mandy (anonymous@obgyn.net)
Tue Apr 20 16:13:32 2004
Hi. I don't know much about that, but I did find this website
http://www.catamenialpneumothorax.com/
--
Mandy
At Tue, 20 Apr 2004, Suzanne wrote:
>
>Hi,
>I am a 35 year old female who has the diagnosis of catamenial
>pneumothorax. I am curious to know how your condition is progressing
>and any other women you have found with this problem and their
>experiences. Thanks
>
>At Thu, 5 Feb 2004, anonymous@obgyn.net wrote:
>>
>>Hey! This is the first time I've posted too. I am a 19 year old female
>>with a history of catamenial pneumothorax and a diagnosis of thoracic
>>endometriosis. Every once in a while I'll find a posting online from
>>someone with the same problems, but as anyone with the condition
>>knows--it is rare...and annoying. I had my first collapsed lung when I
>>was 14 and have had a total of 9 hospital admissions for pneumothoraces,
>>4 lung surgeries and countless other episodes that have resolved on
>>their own. Doctors are stumped by this problem, so finding others and
>>talking about it seems to be a last resort. Anyone interested in the
>>details of my medical history or surgeries feel free to email me at
>>Mego348@temple.edu Thanks!
>>
>>At Fri, 28 Feb 2003, anonymous@obgyn.net wrote:
>>>
>>>At Thu, 13 Dec 2001, Abby wrote:
>>>>
>>>>Hi! This is the first time I've posted. I'm 26 years old and have had
>>>>three collasped lungs in the past year. Two have required chest tubes,
>>>>I've had thoracoscopy and also chemical pleurisy. Even though all three
>>>>began on the day I started my period, some of my doctor's will not say
>>>>for sure that it's endometriosis. It's been a rough year. I'm very
>>>>interested in finding someone I can talk to who's lived through this.
>>>>Maybe even someone who's found treatment that worked! My doctor right
>>>>now want's to put me on Lupron, but I'm horrified by the stories I've
>>>>heard. It's nice to finally find people who at least know what this
>>>>is!!! I've love to hear from anybody, with any kind of experience. Thank
>>>>you so much.
>>>
>>>Hi it is so nice to hear that I am not the only person in the world that
>>>had the same problem. I had two collasped lunges this in the past six
>>>month's. 1 chest tube and then surgery. I am recovering from
>>>thorasastic surgery on my right lung.
>>>
>>>My OB/GYN introduced me to Lupron a few month's ago and I was sopossed
>>>to start it last month, right when my lung collasped again. I was very
>>>frustrated. I do want to use Lupron, however, I can't until I heal from
>>>my surgery.
>>>
>>>What luck we have huh :). I am so glad you wrote, I thought I was the
>>>only person in the world with this condition. Please stay in touch.
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