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Re: Interstitial Cystitis
From: Kellie (anonymous@obgyn.net)
Tue Apr 20 16:04:23 2004
I was also recently diagnosed with IC. My gyn said that endo, IC, and
irritable bowel all seem to run in packs. I had endo on my ureters and
bladder, so when I started having problems like increasing frequency and
urgency, I thought it was the endo. The doc disagreed, and thought
this, with some GI symptoms I'm having, that it was IC and IBS. I'm
still not entirely convinced, but have started the diet. I am seeking a
2nd opinion because the gyn's only recommendation at this time is to
start the diet, while the research I'm doing is showing that the IC
should be confirmed and that there's several things to do initially
(cysto with distention, meds, etc). So I see a urologist tomorrow. I
wish you guys the best of luck!!
--
Kellie
At Tue, 20 Apr 2004, Lori wrote:
>
>At Mon, 19 Apr 2004, Brett wrote:
>>
>>When you suspected you had IC, what was the clue? I have had frequent
>>UTIs since my lap in June 2003 which diagnosed me with both endo and
>>IBS. How severe was the pain? I have been practically unable to
>>function for the past four days because of serious pelvic pain and I
>>went to university health services today and they found a UTI but I
>>don't know if that's enough to cause the amount of pain I'm in. My
>>Ob-Gyn says maybe. Having endo on virtually every reproductive and
>>digestive organ in my body, I have a high tolerance for pain but it was
>>so bad today they had to give me a shot of pain killers in the butt.
>>Please let me know I'm getting anxious.
>>
>>At Mon, 19 Apr 2004, holly wrote:
>>>
>>>hi, i was dx with IC in june. had lap and cystoscopy. was able to
>>>control the pain with diet for a while (eliminate as much acid as you
>>>can). but started having flares again. started elmiron a few days ago.
>>>elmiron doesn't work for everyone, and it takes at least 3-6 months to
>>>even notice a difference. so for now, i'm still watching my diet
>>>closely and trying to control the flares. sometime in october, i will
>>>try drinking orange juice to see if the elmiron is working or not. not
>>>really a scientific study, but i think it will work.
>>>
>>>i found a lot of help from http://www.ic-network.com.
>>>
>>>At Tue, 13 Apr 2004, Jamie wrote:
>>>>
>>>>Has any of you had IC and which of the treatments worked for you?
>>
>>--
>>-Brett
>>
>--
>Hi, I have had similar problems for years. I had severe endo on my ureters.
>I had that removed, but still have problems. I saw a urologist the other day
>and was finally diagnosed with interstitial cystitis. That is an inflamation
>of the bladder lining. It makes your bladder hurt and I have pain up my sides
>when I urinate. It also make you feel like you have to go when you just went.
>I would suggest going to a urologist and getting a specialist opinion.
>
>Good Luck!! :}
>
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