ENDO Messages for April, 2004: Re: Interstitial Cystitis

Re: Interstitial Cystitis

From: Lori (anonymous@obgyn.net)
Tue Apr 20 14:27:25 2004

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Reply: Kellie: "Re: Interstitial Cystitis"

At Mon, 19 Apr 2004, Brett wrote: >
>When you suspected you had IC, what was the clue? I have had frequent
>UTIs since my lap in June 2003 which diagnosed me with both endo and
>IBS. How severe was the pain? I have been practically unable to
>function for the past four days because of serious pelvic pain and I
>went to university health services today and they found a UTI but I
>don't know if that's enough to cause the amount of pain I'm in. My
>Ob-Gyn says maybe. Having endo on virtually every reproductive and
>digestive organ in my body, I have a high tolerance for pain but it was
>so bad today they had to give me a shot of pain killers in the butt.
>Please let me know I'm getting anxious.
>
>At Mon, 19 Apr 2004, holly wrote:
>>
>>hi, i was dx with IC in june. had lap and cystoscopy. was able to
>>control the pain with diet for a while (eliminate as much acid as you
>>can). but started having flares again. started elmiron a few days ago.
>>elmiron doesn't work for everyone, and it takes at least 3-6 months to
>>even notice a difference. so for now, i'm still watching my diet
>>closely and trying to control the flares. sometime in october, i will
>>try drinking orange juice to see if the elmiron is working or not. not
>>really a scientific study, but i think it will work.
>>
>>i found a lot of help from http://www.ic-network.com.
>>
>>At Tue, 13 Apr 2004, Jamie wrote:
>>>
>>>Has any of you had IC and which of the treatments worked for you?
>
>--
>-Brett
>

-- Hi, I have had similar problems for years. I had severe endo on my ureters. I had that removed, but still have problems. I saw a urologist the other day and was finally diagnosed with interstitial cystitis. That is an inflamation of the bladder lining. It makes your bladder hurt and I have pain up my sides when I urinate. It also make you feel like you have to go when you just went. I would suggest going to a urologist and getting a specialist opinion.

Good Luck!! :}

Next message: Mandy: "Re: Bentyl"
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