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Jordan I'm back from surgery and it was major!
From: Endo (anonymous@obgyn.net)
Fri Apr 16 16:20:51 2004
Hi Jordan
Quick note b/c i'm in pain. I ended up with a laparotomy on tuesday. I
just got released from the hospital today friday and my percocet is
wearing off. From what I understand. Endo everywhere, adhesions
everywhere. Lots of old and new endo. They couldnt move any of my
organs around so they moved to the laparotomy pretty much immediately.
The positive thing, I got to keep both my ovaries, and my fallopian
tubes were miraculously intact. Other than that they also took out
extensive adhesions in bowel, bladder, and who knows elsewhere. I
ordered my medical record from the hospital and should be getting it by
monday. Fertility doc will help me get pregnant quickly if it doesnt
happen naturally but he's pretty confident it can happen naturally. i'm
tired......
glad to be alive and fighting with the nurses really helped keep my
spirits up. I'm sure you all know what I mean if you've been there.
At Sun, 11 Apr 2004, jordan wrote:
>
>Hey,
>
>Yes, I had too many surgeries last year! Hopefully, i wont need anymore
>for
>several years.
>
>You are right i did see Dr. A. I made my appointment in October for
>surgery
>in February. There was quite a wait but the alternative was just having
>more surgeries by my doctor in Miami which didnt seem to help.
>
>It says in my operative report that he took out my right ovary and tube
>because of significant pathology within it. My pathology report says
>that there were multiple fibrous adhesions, my ovary was fragmented and
>also it showed a "collapsed" cyst with a white granular lining measuring
>up to 1.5 cm in greatest dimention. So im not sure how big the cyst was
>before it collapsed.
>
>My doctor felt that my ovary was too damanged to save and to make sure
>he got all of the endometriosis within/on it. He did save my left ovary
>which also had a cyst and adhesions.
>
>Good luck to you. You can write me anytime at JBgoth@aol.com if you
>want to chat or have any questions.
>
>Take care,
>
>--
>Jordan
>
>At Sat, 10 Apr 2004, Endo wrote:
>>
>>Hi Jordan,
>>
>>That's a lot of surgeries in less than one year! I'm assuming you went
>>to see Dr. Albee in Atlanta. I've thought of doing that but I hear
>>he's got a long waiting list. Anyways, I'm curious, what motivated your
>>doctor in Atlanta to decide that the best course of action was to remove
>>your right ovary as opposed to just trying to clean it out? Was the cyst
>>too large? How large? Was it severely damaged? Beyond repair? Hope you
>>dont mind writing back.
>>
>>Thanks
>>
>>At Fri, 9 Apr 2004, jordan wrote:
>>>
>>>Hello,
>>>
>>>I just wanted to write that some doctors can remove an ovary and tube
>>>without having to do a laparotomy. I had surgey in Atlanta February 4
>>>and my
>>>doctor succesfully removed my right ovary and tube by laparascopy. I
>>>also had cysts on both ovaries and he removed endo on my intestine by a
>>>regular lap. I was diagnosed with stage 3 almost stage 4 endo.
>>>
>>>I had an emergency laparotomy this past Novemember for internal bleeding
>>>from a laparoscopy done by my doctor in Miami. After that happened, i
>>>knew i had to see an endo specialist. I am doing very well and its only
>>>2 months after my lap
>>>in Atlanta.
>>>
>>>Good luck to you.
>>>
>>>--
>>>Jordan
>>>
>>>At Fri, 9 Apr 2004, Endo wrote:
>>>>
>>>>Thanks for your story. My pre-operative orders say possible laparotomy
>>>>and possible removal of right ovary and tube. He has said that he would
>>>>only remove it if it is not salvagable. I'm thinking he has a point.
>>>>But, what if I refuse to sign off on that? He leaves it in. At least I
>>>>still have 2 ovaries. But then, I have a diseased or badly scarred
>>>>ovary that may lead to more cysts. Or, I get it removed and have one
>>>>left that also becomes diseased with cysts. We definitely want to have
>>>>kids so the thought of losing the ovary scares me. But, I think I have
>>>>a very good doctor and I do trust him and his judgement. Is it better
>>>>just to not agree to USO and leave it in? Im just hoping the mass is
>>>>adjacent to the ovary and not on and encapsulating the ovary.
>>>>
>>>>At Thu, 8 Apr 2004, anonymous wrote:
>>>>>
>>>>>At Thu, 8 Apr 2004, Endo wrote:
>>>>>>
>>>>>>In case folks didnt see my question, I'm moving this back up. If folks
>>>>>>here have endo then there must be one person at least that has had cysts
>>>>>>removed either via laporscopy or laparotomy and can provide me with
>>>>>>their experience.
>>>>>>
>>>>>>At Tue, 6 Apr 2004, Endo wrote:
>>>>>>>
>>>>>>>Hi
>>>>>>>
>>>>>>>Just wondering if anyone has had a complex ovarian cyst removed larger
>>>>>>>than 5cm and whether or not the surgery started as a laparoscopy and
>>>>>>>ended up as a laparotomy and reasons why surgeon decided to go that way.
>>>>>>>Also curious to know if you agreed to BSO or USO (for the side that had
>>>>>>>the mass) and why surgeon felt it was necessary to remove ovary. I
>>>>>>>understand that if the ovary is really really damaged (without
>>>>>>>salvation) surgeon will remove it (with prior permission of course).
>>>>>
>>>>>Last June I underwent a Laporotomy for multiple ovarian cysts on both
>>>>>ovaries,and had one ovary removed partially due to my request and also
>>>>>the extent of the disease. I had the remaining ovary saved so I could
>>>>>try IVF one more time. I now have the cysts back again on that ovary
>>>>>that I saved. I had some difficulty with the laporotomy in terms of the
>>>>>recovery. It is hard to recover from since you can't use your stomach
>>>>>muscles at all, you have to "baby" them until the incision heals--at
>>>>>least 6 weeks. I would definitely prefer a laporoscopy to a laporotomy
>>>>>but I guess my surgeon did not have enough experience with scopes to
>>>>>feel comfortable enough to perform the surgery that way. Get somebody
>>>>>experienced! Find a surgeon who does scopes all that time and feels that
>>>>>they are confident enough to help you. I would never have a laporotomy
>>>>>again if I had a choice. I mean, I did get up and walk around the day
>>>>>after surgery, but it was like a miracle that I could do that. I was
>>>>>very exhausted and in discomfort. Notice that I did not say I was in
>>>>>pain, they give you medication for that, You will get a morpine "drip"
>>>>>to help you through the pain, but morphine is something you don't want
>>>>>to be on for long, get off it as soon as you can. It makes you feel
>>>>>really drugged. I was off it within 14 hours of the surgery, and went
>>>>>onto taking pain pills. Good luck and like I said, do your shopping for
>>>>>a good doctor.
>>>
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