ENDO Messages for April, 2004: Re: Allen-Masters syndrome, pubic symphysis and endo

Re: Allen-Masters syndrome, pubic symphysis and endo

From: charclark (anonymous@obgyn.net)
Mon Apr 12 15:41:46 2004

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In reply to: Lisa: "Allen-Masters syndrome, pubic symphysis and endo"

At Mon, 12 Apr 2004, Lisa wrote: >
>Hi everyone! I just had my 3 week post lap visit with my gyn. I got hit
>with so much info, wondering if anyone else has experienced any of this.
>My endo was mainly in one location (thank goodness),but very deep in the
>ligaments near the bottom of the uterus, close to the vagina and
>sigmoid. Has been there for years and was the major cause of my pain.
>Dr. called it a typical Allen-Masters syndrome adhesion, something I
>never heard of before and would like to know if anyone else has/had it.
>While the pulling pain and bloating has subsided in my abdomen, I still
>have lower back and pubic pain. Turns out that during my lap, the dr.
>saw these two little bones poking into my abdomen above my bladder. He
>thinks that when my pubic symphysis bones widened for childbirth, they
>never went back into place properly, and are misaligned. I know I
>damaged my tailbone too during childbirth, and he feels my pelvic area
>is out of whack so now I need to go to another specialist (orthopedic,
>d.o. or chiropractor). Am waiting for x-ray results to come back.
>Anyone had anything like this?
>
>As far as post-op endo, my dr. is not doing any further treatment at
>this time as he burned a lot of the area around my uterus out, and the
>risks of Lupron for me (mainly decrease in bone density because of
>osteoporosis in the family)are worse than the benefits of the drug. We
>did discuss Neurontin for the remaining pelvic pain and inflammation,
>but am not familiar with this drug. Am still on Celebrex at this time
>and still have the surgical 'blues' where I could cry at any time. That
>too he said takes a few months to go away. He suggested I go back on bc
>pills if I do not want anymore children (that too is iffy because of the
>pelvic bone problem) but hate the migraines. Of course he said the endo
>can come back at any time. Anyone have any comments on what post-op
>treatments worked best for them? Lisa R.

I was told that the anesthesia(sp) plays a signifigant role in post-op blues. After my last lap, I tried steaming at the gym for 15 minutes twice a week to release some of the "blues poison" from my system. I'm really not sure if this made a huge difference, but it didn't hurt and if felt goooooood!!!

I've never heard of the allen-masters syndrome. My pain is also focused in my lower back and sometimes includes my lower pelvic area. The information I've learned from all the stories on this forum is enlightening and amazing. I thought I was crazy and this was in my head. Thank you all so much for proving me wrong.

--
charclark

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