ENDO Messages for April, 2004: Re: Bad side effects from Lupron injection

Re: Bad side effects from Lupron injection

From: Amy (anonymous@obgyn.net)
Mon Apr 12 13:58:36 2004

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At Mon, 12 Apr 2004, anonymous@obgyn.net wrote: >
>At Fri, 9 Apr 2004, Dawn wrote:
>>
>>Hi Mary,
>>If you read through the archives of this forum, you'll see some positive
>>posts about Lupron. My experience is not positive, but I can only tell
>>you what I've experienced.
>>I'm 35 years old, diagnosed with stage III endo back in Nov. after a
>>laser laparoscopy. I was in relatively good health overall at that
>>point, except for having high blood pressure.
>>I started the Lupron injections in January, took a one-month injection
>>in Jan, and one in Feb. After the first injection, the only side
>>effects I experienced were headaches, acne, and recurring yeast
>>infection. I thought to myself, gee, if this is the worst it will be, I
>>can handle this! Boy, was I wrong.
>>The really awful side effects hit me a couple of weeks after the second
>>injection, and are still on-going (needless to say, that was the last
>>injection I took). I am praying they start to subside soon. Here they
>>are:
>>-Heart palpitations/feeling like my heart is pounding;
>>-Chest pains and general muscle pain;
>>-Nervousness;
>>-Insomnia;
>>-Heartburn;
>>-Nausea;
>>-Diarrhea.
>>I have had to go on a beta-blocker for the heart palpitations and when I
>>went to a cardiologist this week, he said I now have a slight heart
>>murmur (which I never had before). He looked up Lupron on some sort of
>>online drug info service he's subscribed to and heart murmurs are one of
>>the side effects experienced by a minority of people. That was the
>>first I had ever heard of that.
>>Next week, I have to have an endoscopy and colonoscopy because I have
>>had diarrhea for 4 weeks now, and have lost 13 lbs., and the doctor
>>wants to make sure nothing else is wrong. I'm convinced it is from the
>>Lupron, because I was fine before it.
>>So, needless to say, I don't recommend it to anyone. The last 4-6 weeks
>>have been an absolute nightmare.
>>Nothing is worth this, unless it is a life or death situation (to me). I
>>will never take this drug again. My husband and I have decided to
>>adopt, because we don't have any children yet either.
>>Good luck to you in your decision, and God bless,
>>Dawn.
>>
>>At Wed, 7 Apr 2004, Mary wrote:
>>>
>>>Hi My name is Mary and I had my first lupron injection almost 3 months
>>>ago, and am due on Apr 20th to get my 2nd shot. Problem is, I really
>>>don't think I want to go for #2. I am having difficulty concentrating,
>>>I'm nervous, anxious, jittery and having hot flashes out the wazoo.
>>>Having alot of trouble sleeping and find myself lost in emotional
>>>distress alot more often, more so than when I suffered with horrible
>>>periods. Anyone out there who went through the "Lupron" hell, er, I
>>>mean treatment, do you have any suggestions on what to do? I really want
>>>to have a baby ASAP, and I feel this may be my only hope.
>>>
>>>--
>>>Mary
>>>
>Hello Mary and Dawn, I am with you both on the Lupron. It is a very
>intense drug with a lot of side effects. I was pretty much healthy
>other than my endo before this drug and now I feel it is causing me a
>lot of stress. I had some blood work done a week ago and it came back
>positive for a "autoimmune disease". The NP said it was a low positive
>but still than makes no difference. I really feel it is the Lupron. I
>will be tested in another month to check on the initial test and see if
>it still comes up positive. I just hope it is the Lupron and not an
>autoimmune disease. I think Iam going ot stop taking the Lupron and
>give my body a break. I have had four shots and this is probably
>enough. I am also now on Remeron for depression. The Lupron has caused
>some depression for me. Good luck to you all! Elisha

--
Hello, new to the site and diagnosis from blood test results
after having four miscarriages.  A recent blood test reviled
that I have anticardiolipin and lupus anticoagulant.  I will
need to be on baby asprin before I get pregnant along with
5000mg of heprin, once pregnant I would increase the shots to
twice a day to maintain the pregnancy.  To complicate matters, I
have a tumor (fibriod on the outer layers of my uters)  Do you
have any advise? We really would like another child asap.
Amy, 31years old.  dawright4937@yahoo.com

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