Re: advise on Endometriosis and finding a specialist (Australia)
From: Julie (anonymous@obgyn.net)
Tue Apr 6 07:13:53 2004
Hi Saskia & Melony,
I am in Australia too and am about to have my 4th shot of Zoladex. I am
not on add back as my gyn doesn't think it is nessesary unless you are
older (I am 34) but am still having endo symptoms even while on the
Zoladex.
I was diagnosed in January this year and had one lap, I am going to have
another to remove an agressive endo node in my bladder on May 18th.
My pain level is pretty bad most of the time and I have pretty bad hot
flushes too but I am thankful to say that I have not had a period since
I started on the Zoladex.
I am in Adelaide. Would be interested to know where you guys live.
Thanks
Julie - Australia
At Sat, 3 Apr 2004, saskia wrote:
>
>Hi Melony,
>Re: Suggested Specialists for endometriosis in QLD.
>
>Have you checked out the ECCA website? See http://www.ecca.com.au. THis is an
>organisation started in Mebourne in 1998 specialising in ENDO !!
>They have clinics in Brisbane and also the Gold Coast. They have all
>sorts of assistance there from the endo specialists to nutsitionists,
>phscyologists, accupunturists, massage etc. They may be able to help
>you??
>I personally havent been there yet but am intending to go soon.
>I have a question for you (and for anyone else reading this) as I have
>just been put on zoladex myself after my 2nd laparoscopy in February.
>THe first month was fine(except for hot flushes and anxiety)but at my
>2nd injection, my gyno put me on some add back oestrogen called Livial
>to assist with bone density. A few days after taking the livial my endo
>symptoms seemed to return.
>Im not sure what to do?? Were you given some add back oestrogen aswell??
>Did you experience endo type symptoms whilst taking the zoladex?? Any
>other info on the effects of the zolodex??
>Good luck and hope to hear from you or anyone else with advice on
>zoladex soon.
>Saskia
>
>At Thu, 11 Mar 2004, Melony wrote:
>>
>>Hi,
>>
>>I was diagnosed with endo in May 2002 via laparoscopy.I was treated for
>>6 months with Zoladex, which did nothing except give me secondary
>>Osteoperosis (the endo grew astronomically while I was on it), then had
>>a second lap in December 2002 to remove the endo. I was then put on
>>continuous BCP's. I started getting a period each month despite the
>>pill approx 7 months ago, they have tried swapping pills but that didn't
>>work. The pain is getting worse and is starting to hang around all the
>>time again, and I also have worsening bowel problems that I won't
>>disgust you with.
>>
>>I would like to try to find an endo specialist in the Brisbane
>>(Queensland) area. I wondered if anyone had seen a Dr O'Connor at St
>>Andrews? He is one of the names I have found. I would also appreciate
>>any advise anyone could give on what to do next. I am seriously
>>thinking of a hysterectomy.
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