Re: New to Endo
From: Cindi (anonymous@obgyn.net)
Mon Apr 5 23:48:57 2004
Bryn,
As a follow up to the laparoscopy I had, I saw my doctor today. She
told me that during the surgery she did remove alot of adhesions. She
described the adhesions as being "spider-web like." One of my fallopian
tubes is adhered in a "C shape" and she was unable to free it up.
But, she was able to free up this thing called a "fat flap." She said
all women have this. I've never heard of that!
The Endo is stage 1. The pictures she took were amazing...kind of
gross, but amazing! She suggested I have a hysterectomy and included
taking both ovaries (and no HRT for 6 months after). She stated that
the hysterectomy would not get rid of all the endo. However, with no
ovaries and no hormones, the left over Endo would die off. I feel
pretty lucky in that I caught this before it got any worse. I guess
having all this happen at 49 years old isn't so bad either.
As for the "lump" in my groin area. The report came back saying it was
"non specific." She said it was like an abcess" I can't remember the
exact wording, but she said it had to do with me using powder possibly.
I don't use powder, or anything else for that matter. It drained a
scant amount for about 2 or 3 days after my surgery then became large,
hard, and painful. It was tunneling in a different direction than
before. Today, my doctor was able to get some fluid out of it for a
culture. She started me on antibiotics and a wet soak to it, hoping
that this might make me start feeling better. I go back in 2 weeks when
this is cleared up and then, I guess, press on with the other.
So far I haven't found any hard evidence relating all these things to
one another, but I have to agree with you. It just seems too
coincedental.
Bryn, thanks for responding and I hope you're doing well!
--Cindi--
At >Cindi, I don't know if I completely understand the "lump" you are
>talking about, but I also have had cyst problems. I have had numerous
>ovarian cysts in the past and then 2 years ago I had a bartholin's gland
>cyst, more of an abcess. I had to have it surgically removed 3 times!
>(most people have them drained and they go away) I asked if that was
>related to the endo ( i was diagnosed with endo last summer) but no one
>seems to know. I really think that there has to be some correlation! Or
>else it's just pure coincidence that some woman are prone to both endo
>and cysts. I also have horrible muscle pain. Because i am new to this,
>too, I am trying to read up and find out what is related to the endo. I
>am beginning to think I am crazy because so much seems to be wrong. I,
>too, feel 30 years older! Unfortunately, I am only 24!
>
>Sorry she wasn't able to remove your endo. I hope everything works out.
>Good luck with everything. It sure is great to be able to read about
>everyone's problems...not that I want everyone else suffering like this,
>but we sure aren't alone, are we?
>
>At Tue, 30 Mar 2004, Cindi wrote:
>>
>>Two months ago I saw my GYN regarding bilateral, multiple, ovarian
>>cysts; lack of menses; bloating; constipation; and generally, just
>>feeling like I was 30 years older than I am. She suggested it may be
>>Endo and since I am perimenapausal, started me on a low dose hormone
>>patch. After a month of bleeding on the patch, she scheduled me for a
>>Lap. That was done 2 weeks ago. After the surgery, she told my husband
>>and friend that she removed adhesions from around my ovaries, and that I
>>had quite a bit of Endo. She could not laser the Endo because it was
>>wrapped around my blood vessels. She suggested a hysterectomy to my
>>husband and I'm sure she will inform me when I see her next week.
>>I have not done much research on Endo as of yet, but what is the
>>relation between that and ovarian cysts? I have also been dealing with
>>muscular pain...shoulders, hips, upper and lower back (for the last
>>year). Does this tie in with Endo? Just prior to my surgery, I asked my
>>doctor to remove this "lump" from my groin. It started out the size of
>>a pea. It felt like it had tunneled out towards my thigh. She thought
>>it was a sebacious cyst but told my husband it was nothing...just
>>inflammation. Well, its back already and bigger than before. Could
>>this be tied in as well?
>>I've always been a pretty healthy person and in touch with my body and
>>the way I feel. I was clueless as to why I had been feeling tired and
>>hurting, but I knew something was up.
>>I feel pretty lucky in that I don't have the debilitating pain that many
>>of you have.
>>Thanks to everyone that posts here. It's very informative and much
>>appreciated!
>> ----Cindi----
>
>--
>Bryn
>
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