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Re: Endometriosis and fatigue
From: SH (anonymous@obgyn.net)
Wed Mar 31 14:15:48 2004
I'm right there with you. My husband teases me because of how early I
go to bed. He'll say "It's 8:00, past your bedtime". And I can sleep
for 12 or 13 hours and it's the same as if I slept for 2. I think it's
a combination of all my pain medication, the fact that have no appetite
a lot of the time, and of course, the pain. It's definitely real, I can
testify to that.
At Tue, 30 Mar 2004, Heather wrote:
>
>At Sat, 27 Mar 2004, Michelle wrote:
>>
>>I was just wandering if anyone else out there has chronic fatigue? I
>>have had this disease (or at least known I've had it for 2 years.) I am
>>28 years old, and I feel like my life is lacking because I am always so
>>tired. I talked to my doctor and he feels it's the anti-depressants I
>>take, but I've been on them in years past and been ok. I guess in his
>>mind all that endo is is pain. Pain is not always my worst symptom.
>>It's fatigue, bloating, allergy problems, and I get sick so easily. Does
>>anyone else out there have these problems? I am getting so frustrated
>>because most people look at me and think that I look healthy, so I must
>>be faking. It's very hard having such a debilitation disease that is
>>invisible to the naked eye. I'm am just curious if it's just me, or if
>>a lot of endo sufferers have these symptoms. Any input on how to have
>>more energy would be greatly appreciated.
>>
>>--
>>Michelle
>>
>Michelle,
>I know how you feel. I am always exausted. I am not on anti
>depressants so i think it's the endo that does it. I have only knowm
>about it for a month but I have had chronic fatigue for about 4 years
>and lots of pain. I don't always have a "Reason" for being so exausted,
>so like you say every one thinks I am faking it or I want attention. It
>really irritates me because I am 27 years old, i am not a child who
>needs to fake an illness to be petted. I really don't need attention. I
>just want someone who will listen to me talk about how I feel and not
>say I think it's all in your head you read too much. I wish people
>understood how dibilitating this disease is without actually having to
>suffer through it, because i would not wish all of this on my worst
>enemy. I also read somewhere that Fibromyalgia/chronic fatigue syndrome
>has been linked to endo, the endo triggers it some how I think. You can
>ask your Doc,but they usually don't see fibromyalgia as a real disese,
>so it may take a specialist. My aunt has it. Do your muscles and
>Joints ache like when you have the flu, for no reason at all? That is
>one of the main symptoms of fibro/chronic fatigue. I only know this
>because my aunt has it and she told me the symptoms so I could talk to
>my doc about it if I had them.
>Any way you are not alone in the fatigue department and even if everyone
>else thinks your faking I know your not, because I have it too.
>Heather
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