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Re: HELP!!!!!!!!!!!!!!From: anonymous@obgyn.netTue Mar 30 19:57:39 2004
At Mon, 29 Mar 2004, anonymous@obgyn.net wrote: > >Ok I have been really good at handling all this sickness pretty well the >last couple of weeks, but now i'm about to pull my hair out!!!! I think >I hate doctors, all they ever do is make me sicker!!! I know there are >some good ones out there but all my doctors have done is diagnosed me >wrong, given me tons of pills, and un-necessary surgeries! The >laparoscopy I had in Jan. was the first surgery that actually did >something, it diagnosed me with Endo, but it didn't help one bit! Then I >get on this stupid depo shot in Feb......oh my gosh, I hate it with a >passion!!! I'm sicker than ever! I'm been quite sick for five years now. >Im' 17, and have spent most of the last 5 years of schooling doing it at >home cause I have been so sick. After that shot I now have so many >symptoms that never really bothered me that much before. I have had >hectic cramps ever since I got my period at 13, but now there worse than >ever! I don't know what to do anymore! I'e tried everything! I can't >afford to live off of pain pills! I've tried Ibruprofen, Tylenol, >exercising, hot pads, cold pads, baths, pain pills, nothing will help! I >have this killer lower back pain, intensely sharp that I have had for a >while now non-stop and off and on before that. And now I got icky >cramps to go with it! I can't do nuttin! Can't rest or anything! >Out of extreme fatigue and achy body, and other pains I have spent most >of the last 3 months, and a lot of the few months before that in bed! I >walk around some, do some exercises, get up to go to the bathroom a ton >(have had frequent urination problems for years) but besides getting up >for some things I have been too sick to get out of my bed sweet bed! Not >to mention I can barely even type, write, hold a phone because my hands, >arms hurt so badly. Everything had been hurting! >Ok I think I'm done venting. The purpose of this message is to get >ideas on what to do for these cramps! I'm not calling my doctor again he >will just tell me to get the Lupron shot and no way in heck I'm doing >that! He isn't much help! And I'm looking into finding anothing doctor, >but for now I need help now! WE can't afford to see a million doctors! >And I'm not going on fifty million pills like I have in the pass just to >find something thats helps! >Well, sorry for the complaining girls, I'm just really frustrated! I >have been through a ton medically at a very young age for years, way >more than most people in there lifetime! It kind of gets old and >frustrating after a bit. Ok well yeah, I'll take suggestions! Of course >I can't go out and buy a ton of things cuz were poor and its hard to get >my parents to get me anything that helps! Rachel, I know how angry all of this can make you. I was diagnosed with endo at age 16. I also missed a lot of school and had to be tutored at home. It is very hard to go thru all of this at such a young age. I am now 25 and I am still alive. :) I am going to have my 4th lap, but I know I will make it thru that one like I did the other 3. My advice is to....... #1 Find a good physician, someone who specializes in endometriosis #2 Give Lupron a try. If you have never been on Lupron, try it. It has been the only thing that helped me when I was first diagnosed. I can no longer use Lupron, because I have exceeded my lifetime use. But, trust me if I could take it I would. #3 Ask your Dr. about taking birth control pills continuosly. I have been doing this for several years and it helps. I also did the depo shot and did not like it. I had to try several types of birth control pills before I found one that worked. A lot can cause break thru bleeding, so it may take some time. So, hang in there and remember things will not always be this bad. Hopefully this advice will help. Good Luck!! Melissa
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