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Re: I need some AdviceFrom: anonymous@obgyn.netTue Mar 30 19:25:24 2004
At Tue, 30 Mar 2004, Heather wrote: > >At Tue, 30 Mar 2004, Tiana wrote: >> >>It's me again. I finally met with the Endo specialist and she was >>great, but I found out some news that didn't really go over well. She >>found a cyst in my right ovary that is a little bigger than a quarter >>and definately suspects that I have endo. Also there is blood in my >>stool and there is a possibility that the endo has spread into my >>colon/rectum. So she wants to refer me to another doctor to have a >>colonoscopy done and find out what is going on and schedule a lap. I >>must admit I am really nervous. Has anyone had this happen to them? >>What did you do? What can I do? I know I have to go see this other >>doctor, but it seems like my family (especially my mother) is more >>concerned with their own personal matters. I feel really scared and a >>bit unsupported it really hurt me that all my mother could say over the >>phone was she's sorry and she's off to texas to see her boyfriend. It >>seems like the drama never ends. I am also trying to figure out how I >>am going to do all this around my school schedule and all my other >>demands. I just don't have the strength. Atleast I know I am in good >>hands as far as my doctor is concerned and I am loosing the old gyno. >>But I just don't know what this means for me. Not to mention I am still >>in pain from all the poking and proding and the ultrasound. I need some >>advice and/or some consolation. Thanks for listening >>Tiana > >Tiana, >I am so sorry that you feel alone. How old are you? I wish your mother >were more understanding and concerned for you and your health. I am 27 >and just found out that I have endo in February. I am still learning >about it and I am terrified. I know how it feels to need someone to >talk to and have no one there to listen. My husband doesn't understand >and hates to see me in pain so he avoids it. All of my friends have >their own problems and the rest of my family lives in Tennessee.(I am in >Indiana) I want you to know, I am not a doctor and I can't make all your >problems go away but I will listen if you need to talk (or write) to >someone. You can E mail me any time or you can send me an instant >message if you want to. My aol address is hamac76@aol.com my yahoo >address is cdmac_online@yahoo.com, >Don't feel that you are imposing on me either. I do this for young >people all of the time. I have no college degree in couceling but the >younger people who come to me for advice or a shoulder to cry on say >that I am good at, so I guess it is my calling to help others and I love >doing it. so please feel free to let me know if you need to get >anything off your chest. >Heather Tiana, I am so sorry you feel like you are having to go thru this alone. Nobody should have to deal with this without a support system. But, now you have someone you can talk to. I understand what you are going thru and it is scary. I was diagnosed with endo at age 16. I am now 25 and it looks as if I will be having my 4th lap in the next month or so. I have been on Lupron twice, and my physician says I have exceeded my lifetime limit of Lupron, so that is no longer an option. My best advice for you is to find a good doctor. It took me a while, but I have one of the best OB/Gyn's in Minneapolis. He specializes in endo and has been very wonderful to me. I have been very fortunate that my family and friends have been very supportive, but nobody fully understands unless they have been thru this. So, please keep your head up and know that you can e-mail me anytime you need to talk. Sometimes just knowing you are not alone helps to make it thru the day. Good luck, and please do not hesitate to contact me, my e-mail is mdsporn@hotmail.com. You came to the right place, this forum seems so helpful. Take Care, Melissa
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