Re: I need some Advice
From: Mandy (anonymous@obgyn.net)
Tue Mar 30 10:07:37 2004
Hi! I have yet to be diagnosed with intestinal endo...but I do have
endo...had a lap. last year. I am very sure that it is the endo
causing troubles with my bowels. I was told that I may have IBS. But I
kept a record of what I ate, and nothing I ate gave me problems..the
pains and stomach troubles just came at any time. So I have an appt.
with a GI dr. at the end of April to discuss my options. I will most
likely have a lap. done again with a GI surgeon standing by in case
other work needs to be done.
My symptoms are a lot like IBS, but here it is: At any given time I will
have horrible gas type pains in my lower stomach area, the only way to
get this pain to ease up is to have a bm...which doesn't always happen.
The pain is excrutiating at times and it will last near 2 hours. I get
hot flashes, feel like I'm going to pass out, and then the pain comes.
The reason why I think this is the endo is b/c after these attacks my
side hurts like the endo pain does. I have been doing a lot of research
on intestinal endo and this is exactly what it sounds like. With IBS
food and stress trigger attacks...but I have learned that there is
nothing food related to this.
--
Mandy
At Tue, 30 Mar 2004, amy wrote:
>
>Hi Mandy,
>How were you diagnosed with intestinal endo? what were your symptoms?
>Thanks,
>Amy
>
>At Tue, 30 Mar 2004, Mandy wrote:
>>
>>Hi. I am also in the same boat as you. My gynecologist is great, but
>>she doesn't specialize in intestinal endometriosis, which is most likely
>>what is going on. I had a lap. last year and they found endo and
>>lasered it off, but now it's back. Nice, huh? But, I guess they are
>>doing the colonoscopy just to make sure nothing else is there. But that
>>is a pretty expensive procedure to have if they can't see anything.
>>Meaning, that a colonoscopy can't see endo, only a laparoscopy can find
>>it. I'm glad to hear that you have found a dr. that you like.... that
>>is very hard to find!! May I ask what kind of symptoms you are having as
>>far as the intestinal problems?
>>
>>--
>>Mandy
>>
>>At Tue, 30 Mar 2004, Tiana wrote:
>>>
>>>It's me again. I finally met with the Endo specialist and she was
>>>great, but I found out some news that didn't really go over well. She
>>>found a cyst in my right ovary that is a little bigger than a quarter
>>>and definately suspects that I have endo. Also there is blood in my
>>>stool and there is a possibility that the endo has spread into my
>>>colon/rectum. So she wants to refer me to another doctor to have a
>>>colonoscopy done and find out what is going on and schedule a lap. I
>>>must admit I am really nervous. Has anyone had this happen to them?
>>>What did you do? What can I do? I know I have to go see this other
>>>doctor, but it seems like my family (especially my mother) is more
>>>concerned with their own personal matters. I feel really scared and a
>>>bit unsupported it really hurt me that all my mother could say over the
>>>phone was she's sorry and she's off to texas to see her boyfriend. It
>>>seems like the drama never ends. I am also trying to figure out how I
>>>am going to do all this around my school schedule and all my other
>>>demands. I just don't have the strength. Atleast I know I am in good
>>>hands as far as my doctor is concerned and I am loosing the old gyno.
>>>But I just don't know what this means for me. Not to mention I am still
>>>in pain from all the poking and proding and the ultrasound. I need some
>>>advice and/or some consolation. Thanks for listening
>>>Tiana
>>
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