ENDO Messages for March, 2004: Re: Help with Depot-Lupron & getting 'aunt flo' Back!

Re: Help with Depot-Lupron & getting 'aunt flo' Back!

From: Maggie (anonymous@obgyn.net)
Sun Mar 28 18:23:51 2004

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In reply to: Anonymous: "Re: Help with Depot-Lupron & getting 'aunt flo' Back!"

Sun mar 28 2004 , Maggie wrote: Jennifer. I too was on Lupron. However am just trying to understand how long you were on this for? As far as I knew. A female is only allowed to be on this for 6 months and never again. It did take approx 2 - 3 months for my "aunt flo" to come back. It's just very possible that switching from a monthly injection to a 3-month injection could have thrown your system that out of whack. With this injection you have to remember that it puts your body through "menopause". I went through hot flashes, mood swings, loss of memory. And it took a year for it to completely get out of my system. Not a fun time.... I bet you the weight gain does have something to do with the fact that you haven't had your period in quite some time. And keep in mind all the "hormonal craziness" (as my boyfriend put it) your body may be going through. Good luck and pls keep me posted on your progress. Maggie

>
>At Thu, 25 Mar 2004, Jennifer wrote:
>>
>>I have endo, and underwent laproscopic surgery in Nov of 2002. I had
>>gone on Depot Lupron the following January (monthly shot) and then in
>>September my OBGYN switched me to the 3 month dosage. I had a terrible
>>allergic reaction, while OVERSEAS (very embarrassing!) visiting and
>>meeting my fiance's family.
>>
>>I haven't gone back for another shot since, and I should have started my
>>period back in January, but here it is the end of march and "no action".
>>My GP Doctor told me we have to wait until I have a period to do some
>>bloodwork and then he wants me to go to the Endocrynologist my sister is
>>seeing. How long should the "wait" be for me to have a period?
>>Frankly, i've gained 50 pounds (roughly 25 kilos) since my shot in
>>September.. and I am retaining water. I seem as if I am pregnant as
>>well, and I have never been sexually active!
>>
>>Help, anyone!
>>-Jennifer H
>>
>>--
>>Psalm 119
>
>Jennifer, I have gained 30 pounds from the 3month Lupron shots and also
>have water retention, even 6 months after it wore off. I am taking
>Lasix for the water, and it is helping. Unfortunately, I cannot lose
>the weight. I have tried the low carb diets, eating lettuce twice a day
>and not much else, exercise, everything. What can I say? I thought I
>was the only one out there who'd gained significant weight on it and had
>edema, but I guess not. Good luck to you and feel free to email me to
>talk more privately.
>I did get "aunt flo" back, with a vengeance. It's worse than before the
>Lupron...but I think I have heard it can be 3-6 months after the final
>shot before it kicks in again. Also, could the weight gain have an
>impact on your menstruation?
>>

--
I was diagnosed with pelvic endometriosis about 3 years ago.  Many of my symptoms
had to do with stomach aches, back pain and frequent trips to the bathroom.  When
I threw out the idea to my specialist that I could have endometriosis of the
bladder  - he looked at me like I was crazy.  So of course when he did the
lap three years ago he dismissed my thoughts and didn't check the outside of
my bladder.  Now I am on the birth control pill consistantly so I do not menustrate.
This of course is helping the majority of my pain and symptoms.  But I'm still
experiencing back pain, many trips to the bathroom and pain when I feel the need
to go and pain if I do go.
So, I am another woman who understands what you ladies are going through.
Question is now....what steps do we take next to find relief for ourselves.

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