Re: Frustration about recent changes to health concerning endo, hesistation to see doctor again
From: frenchie (anonymous@obgyn.net)
Sat Feb 28 15:02:00 2004
Franny:
Have you talked to your doctor about having another laparscopy, and
aggressively removing the endo that is found - everywhere - including
near the colon, which can be hard to remove? If he is not willing to do
it, maybe you should look for another doctor.
--
Frenchie
At Fri, 27 Feb 2004, Franny wrote:
>
>I am 21 years old, and was diagnosed with endometriosis at 19. I had a
>laparoscopy performed about a year and a half ago to both diagnose and
>treat my endometriosis. Post-surgery I was placed on birth control,
>Levlite first, then Yasmin, then Nuva Ring, presently Ortho Evra. My
>pain and symptoms, which include nearly constant aching, diarrhea, pain
>with intercourse, fatigue, as well as others, subisided tremendously
>after the surgery, but began to reappear about 3-4 months later, at
>which time my birth control was changed. As before, 3-4 months later,
>my pain and symptoms began to reappear, so my birth control was changed,
>which lead to temporary relief from symptoms but in the same 3-4 month
>schedule, pain/symptoms reappeared. As a different approach than merely
>switching birth control, I have switched and am only having a period
>every three months. Right now, I am in the most significant pain I have
>been in since before my surgery, and my most recent period had me in bed
>for three days. Pain is constant though it varies in severity. Often I
>have diarrhea or feel nauseous, the nausea comes more with severe pain.
>My partner and I have stopped having intercourse because the pain during
>and after is so intense, despite having tried different positions,
>penetration, amount of foreplay, etc (all of which my most recent doctor
>has suggested).
>
>I am at a loss about what to do next. I am beyond frustrated. I don't
>like that this is something I do not have control over. I don't like
>that I hurt and am exhausted all of the time. I do not like that I do
>not know what is going on with my body. However, I am having some
>hesitation about going back to the doctor. What are they going to
>suggest next? Another surgery? More intense hormones? That I'm losing
>it? I feel so uncertain and afraid about all of this. I do not live
>close to my family, and even with the support from my partner, none of
>my other friends have any idea what is going on, so I end up keeping a
>lot of this to myself.
>
>I'd appreciate any comments or suggestions.
>
>Have a great day!
>
>--
>Franny Buffa
>Arcata, CA
>
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