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Re: I want to give up if the lap is negative
From: anonymous@obgyn.net
Fri Feb 27 00:22:20 2004
Sherly-
I almost fealt like I was reading about myself, when I started reading
your post. Today is the first time I came on this site- I am 26 & have
had pains since I was 16 & diagnosed at 21. I can relate to your
"weird" feeling. I too felt alone & when people asked "what is it?" it
is very hard & at times embarassing to try & explain. Anyways I just
wanted to give you a "personal opinion" Lupron injections are tough to
go through. You literally are going through menopause for 6 months & it
is just awful. My family & friends begged me not to do it again when
the doc suggested a second round.. :) HOWEVER we are all different &
that may just have been me. Here's my ? What kind of insuarnce do you
have? YES they are $1500 BUT I paid $10 a shot. And they DO help for
some time, but I do agree with Frenchie they do not "cure" just help you
along for a while. And I am sorry about your parents I went through the
same thing..
"If I ate healthier I would get better, if I didn't drink I would get
better. if I got some decent sleep i'd get better". I only started
getting better when I took matters in my own hands. I guess I am
lucky--i have a doctor that I ADORE!!! who tells me what she thinks is
best & I trust her. Where do yo live? Maybe we can help find you a
"specialist" I am due for my third lap on March 15th & I actually asked
for it. I tell you what..if you have never had one, yes it's a bit
scary, but I feel so comforted knowing they are going to the "heart of
the problem" not guessing from the outside. Know what I mean? It will
be ok--you HAVE TO trust your doctor MOST importantly, when is your lap?
At Thu, 26 Feb 2004, frenchie wrote:
>
>Sherly:
>
>Your symptoms sound very similar to mine before my lap. I had horrible
>cramping - so bad I thought I was dying. Once I almost passed out from
>the pain in the middle of a quickie mart and the ambulance came. Of
>course, they just told me, "sounds like bad menstrual cramping". Ugh.
>
>Good for you for demanding that your doctor give you a lap. For me,
>personally, it was the only way to go. I think that birth control pills
>and even Lupron just mask the symptoms (if you are lucky) but they don't
>cure the disease. A lap, if done well, can remove all of the endo. Make
>sure your doctor is actually planning to remove the endo he finds while
>doing the lap. Some doctors will just note where it is and close you up
>again. I also had an endometrium tumor in my left ovary. My doctor
>removed it during the lap. The good news is that I no longer have any
>of the terrible cramps I had before I had surgery. (I am now posting
>again because I'm dealing with a few urinary/bowel problems that my
>doctors think might be endo again.) So there is hope for you after your
>lap!
>
>There are web sites out there that actually walk you through a
>laparotomy and tell you what to expect. There are also web sites with
>good tips on how to prepare for a laparotomy. It's been several years
>since I looked at the sites so I don't remember where they are - sorry.
>Maybe someone else here has links to some web sites that can help you
>prepare for your lap.
>
>--
>Frenchie
>
>At Thu, 26 Feb 2004, Sherly wrote:
>>
>>Hi every one! I am new to this site endo is my best friend. I feel I
>>have so much to say because I thought I was weird and never met anyone
>>with my situation. I have visited several sites about endometriosis. I
>>wanted an answer. Sometimes other people and the doctors I have seen
>>make me feel that there is no hope but I keep praying and keep looking.
>>I am 22 and I have endo since I was twelve. Believe me nothing was done
>>except telling me that it's ok to have pain during my period and that
>>once I have a child the pain will go away. It was a lie. For 7 years I
>>didn't know what was going on inside of me. I was diagnosed with endo
>>when I was 19. However at 16 I started having pain every day whether I
>>had my period or not. Today, I am still in pain but I take control; I
>>change doctor and demand that I take no more pill and narcotic and to
>>have a laparoscopy to know where are the lesions and where to go from
>>there. I have a chocolat cyst (related to endo)in my left ovary. I
>>have to go for ultrasound and then lap. I am not afraid but I am
>>concerned, I don't know what to expect. I feel depressed and I am tired
>>I feel like giving up. Can anyone please help me through this process?
>>I will be very grateful Please. The doctor want me to take lupron which
>>cost $1,500 which I can't afford. So I feel I have no choice; I am
>>trapped. Please write me anything that can help. Thank you so much I
>>am glad that I am not alone and that I am not abnormal or complicated
>>like my parents pointed out. This website is also helpful:
>>http://www.CenterForEndo.comrd and I was alone. Thank God for this site.
>
--
Kelly :)
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